tag:blogger.com,1999:blog-84502293052162727232024-02-08T04:12:28.944+00:005 children Type 1 Diabetes, Coeliacs, me and my husbandType 1 Diabetes & Coeliac Blog About Family Life5 children diabetes, coeliacs and mehttp://www.blogger.com/profile/18355214554299409897noreply@blogger.comBlogger169125tag:blogger.com,1999:blog-8450229305216272723.post-25061042586287148772015-02-16T22:51:00.000+00:002015-02-16T22:51:15.169+00:00From 1 Angry Bird To Another Angry Bird !<div dir="ltr" style="text-align: left;" trbidi="on">
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The New Generation Of Blood Glucose Meters.</h2>
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MODZ BLOOD GLUCOSE METER.</h3>
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<tr><td style="text-align: center;"><a href="http://www.gomodz.com/wp-content/uploads/bfi_thumb/angry-birds-red-Modz01-m4hnru16jtdxb2e37p50jwynfhq3uodlh3sssntjb6.jpg" style="clear: left; margin-bottom: 1em; margin-left: auto; margin-right: auto;"><img alt="" border="0" class="lightbox-false" src="http://www.gomodz.com/wp-content/uploads/bfi_thumb/angry-birds-red-Modz01-m4hnru16jtdxb2e37p50jwynfhq3uodlh3sssntjb6.jpg" height="186" title="" width="200" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Captured and sent to the one who watches.</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">Mum no longer needs to ask if I have tested my blood glucose level etc.</td></tr>
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<span style="color: black; font-family: "Arial","sans-serif"; font-size: 10.0pt;">Press Release.</span></h3>
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<span style="color: black; font-family: "Arial","sans-serif"; font-size: 10.0pt;">"The world’s first motivational
monitor reminds the child to measure and most importantly help them to keep
consistent with it - the crucial action they must do several times every day.
As we know, the development of non-invasive measuring methods look promising,
but they still cannot replace the importance of a blood sample, especially for
kids."</span></h3>
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"In addition of being cool and
motivating, Modz is the embodiment of the <i>eHealth</i> buzzword. It
automatically sends the measuring results in real-time to a cell phone either
by SMS or email, and to a designated cloud service on the Internet. All test
results and the carbohydrate contents of meals, insulin dosages as well as
sports exercises will be stored there. It’s the ultimate automatic electronic
diabetes diary always available. It connects effortlessly the diabetic and
their family with the healthcare team.</div>
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Modz also gamifies the experience of living with
diabetes by featuring a touchscreen interface full of Rovio's <a href="http://www.wired.co.uk/angry-birds">Angry Birds</a> characters, whose colours
correspond to the child's blood glucose levels. The device features
four levels, and users are awarded points for good test results,
which allow them to progress up the levels."</div>
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<span style="color: red;">My thoughts: </span></h3>
<br />
I have to say, when I was approached to write a review on a new
style blood glucose meter aimed at children. I laughed aloud when I
heard that it was based on the "Angry Birds". As Claudia can often
appear and be described as an angry bird herself. Especially when her blood glucose levels are lower or
higher than desired.<br />
<br />
The meter was officially launched with a press release on the 10th February 2015.<br />
Claudia's meter arrived several days later.<br />
It's
colourful, funky and is a refreshing change from the conventional
meters that may appear bland and predictable. Claudia will often just look at them and say "is that it" very disheartening when you have spent a substantial time filling in an on line form. To be honest 7 years in we
needed a meter that embraced the technology that is "The Cloud" I know it is being utilised in so many other areas so why not blood glucose meters.<br />
I am not a technical expert! I am an average mum trying to control and manage the beast that is T1 diabetes. <b>This is reflected in the style of review I have written.</b><br />
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<span style="color: blue;"><b><span style="font-weight: normal;">On a more emotional note:</span></b></span></h3>
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When Claudia was diagnosed aged 7 in DKA our life changed forever. I will never forget that gut wrenching feeling seeing her with tubes every where. Claudia was always compliant and made a challenging condition a little bit easier. Then she started High School and our swords crossed. I had to learn to step back and allow Claudia to take control and lead me. In reality I had no choice. No one really prepared me for this. As strange as it may seem this system allows her to keep her privacy yet at the same time the information that reassures me is sent via email. It's taken that "mother nagging and asking those questions yet again away" Whilst Claudia is aware that the information is sent to me. I am not asking her any direct questions. Direct questions are not cool in a teenagers eyes.</div>
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<span style="color: #38761d;">What we like:</span></h3>
Easy to set up <br />
It's touch screen<br />
Simple to use <br />
Claudia wears it round her neck during the day(how many times has she lost her hand held meters)<br />
Every time any information is registered it is sent to me. Oh YES!!!!!!! <br />
My favourite I can "stalk" her blood glucose levels, carb consumption, insulin dosage etc! Yes every parents dream......... (if we are honest)<br />
We no longer need to wait in anticipation as the meter has the option to use with audio. If I cant's see it I can hear it.<br />
No need to covertly check her meter<br />
Claudia can play and unlock levels depending on how many points she has.<br />
You are able to set your own realistic BG goals<br />
Share the information with your specialist team <br />
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<br />
<b>The meter takes out the oh so well known question's that really irritate our children</b>.<br />
<br />
What's your BG? <br />
How many times have you tested today?<br />
What time was your last BG ?<br />
Have you bolused?<br />
How many carbs have you had?<br />
All the other sentences that trip off the tongue of a T1 parent.<br />
If it's way out of range you can breathe and think before you make any suggestions or comments.Which are often not wise words in a teens mind.<br />
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</xml><![endif]-->Test after dinner 6.5 good 13-02-2015 22:11</div>
<div class="MsoPlainText">
<b>This is what you receive via email or SMS. Exact and Simple.</b></div>
<div class="MsoPlainText">
Please note that we have had some "Angry Bird" style readings.......</div>
<h4 class="MsoPlainText" style="text-align: left;">
</h4>
<h4 class="MsoPlainText" style="text-align: left;">
<span style="color: red;">Claudia</span> <span style="color: blue;">aged </span><span style="color: #38761d;">13 and 3/4</span> <span style="color: yellow;">and her thoughts</span>:</h4>
<div class="MsoPlainText">
Claudia:It's really good! </div>
<div class="MsoPlainText">
Me:Come on Claudia. </div>
<div class="MsoPlainText">
Claudia: It's excellent. Pretty sick.... </div>
<div class="MsoPlainText">
I suppose for a 13 and 3/4 year old that's a good response as she actually spoke to me and it's more than 1 word. </div>
<div class="MsoPlainText">
<br /></div>
<div class="MsoPlainText">
This is an honest review from a parents and a child's perspective. This is a product we would like to use on a permanent basis. As it is new to the market it is not available on the NHS. </div>
<div class="MsoPlainText">
I will be taking both "Angry Birds" to our clinical team based in Leeds next week. It will be interesting to hear their thoughts.</div>
<br />
<br />
<br />
<br />
<br />
<br />
<img alt="" class="lightbox-false" height="140" src="http://www.gomodz.com/wp-content/uploads/bfi_thumb/modz-blood-glucose-meter-cloud02-m4mgb5fdo1w3230k5qiujbkx757wlqhip3xm76lm3u.jpg" title="" width="200" /><br />
<div class="MsoPlainText">
</div>
<h3 class="MsoPlainText" style="text-align: left;">
An example of the information that can be accessed via "the cloud" </h3>
<h2 class="MsoPlainText" style="text-align: left;">
<span style="color: red;"><span style="font-weight: normal;">In summary:</span></span></h2>
<h3 class="MsoPlainText" style="text-align: left;">
</h3>
<h3 class="MsoPlainText" style="text-align: left;">
Its, funny, effective, does what it says, enables sharing without confrontation. <b>Please NHS UK make it available.</b></h3>
<h3 class="MsoPlainText" style="text-align: left;">
</h3>
<h3 class="MsoPlainText" style="text-align: left;">
<span style="color: blue;">My new line to Claudia is: </span></h3>
<h3 class="MsoPlainText" style="text-align: left;">
<span style="color: blue;">Anytime, Any Place, Anywhere you can share!</span></h3>
<h3 class="MsoPlainText" style="text-align: left;">
</h3>
<h3 class="MsoPlainText" style="text-align: left;">
For full technical and cost details please use the links below:</h3>
<br />
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</xml><![endif]--><span style="color: blue;"><span style="font-family: "Times New Roman","serif"; font-size: 12.0pt; mso-ansi-language: EN-GB; mso-bidi-language: AR-SA; mso-fareast-font-family: Calibri; mso-fareast-language: EN-GB; mso-fareast-theme-font: minor-latin;"><a href="http://modz.fi/" target="_blank"><span style="font-family: "Tahoma","sans-serif";">www.modz.fi</span></a></span></span><span style="color: black; font-family: "Tahoma","sans-serif"; font-size: 12.0pt; mso-ansi-language: EN-GB; mso-bidi-language: AR-SA; mso-fareast-font-family: Calibri; mso-fareast-language: EN-GB; mso-fareast-theme-font: minor-latin;"></span></h3>
<span style="color: black; font-family: "Tahoma","sans-serif"; font-size: 12.0pt; mso-ansi-language: EN-GB; mso-bidi-language: AR-SA; mso-fareast-font-family: Calibri; mso-fareast-language: EN-GB; mso-fareast-theme-font: minor-latin;"></span><br />
<h3 style="text-align: left;">
<span style="color: black; font-family: "Tahoma","sans-serif"; font-size: 12.0pt; mso-ansi-language: EN-GB; mso-bidi-language: AR-SA; mso-fareast-font-family: Calibri; mso-fareast-language: EN-GB; mso-fareast-theme-font: minor-latin;"></span><span style="color: black; font-family: "Tahoma","sans-serif"; font-size: 12.0pt; mso-ansi-language: EN-GB; mso-bidi-language: AR-SA; mso-fareast-font-family: Calibri; mso-fareast-language: EN-GB; mso-fareast-theme-font: minor-latin;"></span><span style="color: blue;"><span style="font-family: "Tahoma","sans-serif"; font-size: 10pt;"><a href="https://www.facebook.com/ModzOy?ref=hl" target="_blank">www.facebook.com/ModzOy</a></span></span></h3>
Please note these are my personal thoughts alongside Claudia's. We have not been paid to write this review. <br />
<br /></div>
5 children diabetes, coeliacs and mehttp://www.blogger.com/profile/18355214554299409897noreply@blogger.com7tag:blogger.com,1999:blog-8450229305216272723.post-8474891216274579872014-11-11T00:40:00.000+00:002014-11-11T19:59:12.524+00:00World Diabetes Day 2014<div dir="ltr" style="text-align: left;" trbidi="on">
<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><img alt="" src="http://all-images.org/wp-content/uploads/2014/11/keep-calm-and-support-world-diabetes-day-500x312.png" height="312" id="yui_3_5_1_5_1415654925810_766" style="height: 312px; margin-left: auto; margin-right: auto; width: 500px;" width="500" /></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><h3>
<span style="color: blue;">Lets Go Blue Together</span></h3>
</td></tr>
</tbody></table>
<div style="text-align: center;">
<br /></div>
<h3 style="text-align: center;">
Claudia is now 13 and we are celebrating our 7th World Diabetes Day. </h3>
<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjzODufGy3vz2URSgOF9wkZttO-l9wPLerC6EVoQbTxdFBXSu6BWDk2SxX2ZXmtDjk-lMwVrNATMqUAutoFAla5jTSeKmKBXXMTnsKOFKVVPgVzZYLoJMT1-2x9rYtltmEgjlgrdfBsK74/s1600/WWD+2.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjzODufGy3vz2URSgOF9wkZttO-l9wPLerC6EVoQbTxdFBXSu6BWDk2SxX2ZXmtDjk-lMwVrNATMqUAutoFAla5jTSeKmKBXXMTnsKOFKVVPgVzZYLoJMT1-2x9rYtltmEgjlgrdfBsK74/s1600/WWD+2.JPG" height="320" width="180" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Claudia aged 13</td></tr>
</tbody></table>
<h3 style="text-align: center;">
</h3>
<div style="text-align: left;">
<b>Claudia has now been living with Type 1 Diabetes for half her life.</b></div>
<div style="text-align: left;">
<br /></div>
<div style="text-align: left;">
Whilst I am sat in bed writing this, my beloved husband looked at me sighed(oh
no she's blogging) turned over and went to sleep snoring. Stanley
the Labrador is at the end of the bed and Luther the cat is busy trying to swipe my hands whilst I am typing. Claudia is 5.3 will she go higher or lower ? Crystal Ball Please! It looks like it's going to be another winning night. Match sticks and lot's of make up will be required in the morning.</div>
<div style="text-align: left;">
<br /></div>
<div style="text-align: left;">
<b>Claudia's Journey </b></div>
<div style="text-align: left;">
Claudia was born at 42 week a healthy 7lb.
She was beautiful and perfect and still is. Nothing can prepare you for
parenthood. The sleepless nights, nappy changing, projectile vomit and
the irritating husband who loves you. Looking back life was perfect.</div>
<div style="text-align: left;">
<br /></div>
<div style="text-align: left;">
<b>2008 = Type 1 Diabetes </b></div>
<div style="text-align: left;">
As a parent<b> </b>I have mixed feelings. Whilst I am very proud of Claudia, my heart is heavy. This is not the life I envisaged her living<b>. </b>As a parent one of our many roles is to make things better and solve problems. When Claudia shouts or cries to me, "mummy I want this to go away and I want to be normal" the hardest words for a parent to say are: I am sorry I can't make this better and I can't make it go away. These are the words I often say. </div>
<div style="text-align: left;">
<br /></div>
<div style="text-align: left;">
<b>A day in the life of Claudia</b></div>
<div style="text-align: left;">
<br />
Me: What's your BG Claudia</div>
<div style="text-align: left;">
Claudia: Mum I have only just got up, leave me alone</div>
<div style="text-align: left;">
Me: Claudia</div>
<div style="text-align: left;">
Claudia: 9</div>
<div style="text-align: left;">
Me: Correction please</div>
<div style="text-align: left;">
Claudia: I know.....</div>
<div style="text-align: left;">
Me: Don't forget to weigh your breakfast</div>
<div style="text-align: left;">
Claudia: Oh for goodness sake leave me alone I know!!! ahhhhh!!!</div>
<div style="text-align: left;">
Me: Are your cannula's ok.</div>
<div style="text-align: left;">
Claudia: Mummmmmm shut up.</div>
<div style="text-align: left;">
<br /></div>
<div style="text-align: left;">
The above is a constant 24/7 like the film <b>Ground Hog Day.</b> It continues via text whilst she is at school or out with friends.</div>
<div style="text-align: left;">
Claudia has to weigh, carb count every item of food she eats and calculate the insulin required. She has to have one cannula changed every 3 days and another every six days. Between 2 & 10 finger prick tests a day.We have to try and keep her blood glucose levels between 4-7. To be honest the chances of me being Prime-minister would be more realistic. </div>
<div style="text-align: left;">
<br /></div>
<div style="text-align: left;">
The last 12 months have been a challenge. Tantrums and Tiara's are to be expected having 5 beautiful daughters. Then add the T1 and hormones! The tantrums become spectacular and several tiara's get thrown.(literally). </div>
<div style="text-align: left;">
Oh what a special joy watching, ducking and diving through the mysteries of unexplained high and low blood sugars. The teen rebellion. I'm not testing, taking my bag out, not remembering to bolus, etc. </div>
<div style="text-align: left;">
<br /></div>
<div style="text-align: left;">
<b>Top 5 T1 Sad Days !</b></div>
<ul style="text-align: left;">
<li>Diagnosis 1st May 2008.</li>
<li>First birthday party after diagnosis.</li>
<li>Begging for a pump. </li>
<li>DKA Due to a simple sickness bug.</li>
<li>Having to administer the "orange kit".</li>
</ul>
<div style="text-align: left;">
<b> Top 5 T1 Funnies & Good Stuff.<span style="background-color: #cfe2f3;"></span></b></div>
<ul style="text-align: left;">
<li>8 months pregnant, losing my balance whilst injecting and rolling backwards in a public toilet holding a syringe. Not a good look for a pregnant woman, especially in public on the floor.</li>
<li>Trying to leave the hospital mid way through labour as Claudia was hypo and I was a little "high" on gas and air.(not at the time)</li>
<li>Claudia finding her voice and debating with her clinical team.</li>
<li>All the amazing friends we have made who truly understand.</li>
<li>Claudia telling people when they are talking ************** about T1. </li>
</ul>
<h3 style="text-align: left;">
Highlights of 2014</h3>
<div style="text-align: left;">
We decided that we would buy a caravan. This seemed to amuse some of my friends as 99.9% of the time I trot round in 6inch heels. I loved the fact that we could pack everything into the caravan and just go. Donald and I only had 1 domestic whilst putting up the awning.</div>
<div style="text-align: left;">
I wasn't prepared for the CGM echoing through a campsite in the early hours of the morning. Followed by "get off me, what are you doing". I am fine. Which added a symphony to the beep beep beep of the CGM. Could we be any louder? Oh yes! the other girls started telling Claudia to be quiet and just do a test. What can I say it was a very special first night in the caravan. It was one of those occasions that I could have happily jumped on the CGM.</div>
<div style="text-align: left;">
Ah the unexpected joys of T1 and technology! </div>
<div style="text-align: left;">
<br /></div>
<div style="text-align: left;">
Seven years in I am not as angry as I was initially. When Claudia was first diagnosed I was devastated but very angry. Why Claudia? How I refrained from knocking people out who said the following I will never know:</div>
<div style="text-align: left;">
<br /></div>
<div style="text-align: left;">
God knows you can manage .......................................(mmm he got that wrong)</div>
<div style="text-align: left;">
Should she be having sweets........................................(should you)</div>
<div style="text-align: left;">
She looks healthy to me................................................(what should she look like)</div>
<div style="text-align: left;">
She has insulin so it's easily managed...........................(lol!!!!!) </div>
<div style="text-align: left;">
Will she grow out of it...................................................(Pardon)</div>
<div style="text-align: left;">
She must be used to injections.......................................(no)</div>
<div style="text-align: left;">
It could be worse.............................................................</div>
<div style="text-align: left;">
<br /></div>
<div style="text-align: left;">
So many more.................................,please feel free to add at the end of my blog.</div>
<div style="text-align: left;">
<br /></div>
<div style="text-align: left;">
These days my skin is a little thicker and I am not as easily rattled. </div>
<div style="text-align: left;">
<br /></div>
<div style="text-align: left;">
2014 has been an exciting year for new technology with more due. To date no cure. </div>
<div style="text-align: left;">
I do believe that some of the medical advances that are currently in clinical trials are exciting.</div>
<div style="text-align: left;">
The Families and Children's Act 2014. New Legislation that hopefully will help support children living with long term medical access the support they deserve within education.</div>
<div style="text-align: left;">
<br /></div>
<div style="text-align: left;">
I feel blessed that I have many adult friends living with Type 1 who are truly inspirational. They highlight how positive life can be as an adult living with T1. They are also honest and share the good, bad and truly ugly side of T1. This helps me support Claudia and be prepared for the years ahead. An insight no clinic could provide.</div>
<div style="text-align: left;">
<br /></div>
<div style="text-align: left;">
<b> T1 Delightful habits:</b></div>
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<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="float: left; margin-right: 1em; text-align: left;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjky5-TZhBqybuUAlwFIEnxHmmHMhF_7boGI4Rds8-QaTYmGHnZOs5OZwHJbdpIJHdlgfa3x4Cj9s-F6i3keSgsQ7J9GeM3HkwTZEXGEO0akG8mYoovtIHEfoMjUOeNHH3fCn2r0zMcZl4/s1600/WWD11.JPG" style="margin-left: auto; margin-right: auto;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjky5-TZhBqybuUAlwFIEnxHmmHMhF_7boGI4Rds8-QaTYmGHnZOs5OZwHJbdpIJHdlgfa3x4Cj9s-F6i3keSgsQ7J9GeM3HkwTZEXGEO0akG8mYoovtIHEfoMjUOeNHH3fCn2r0zMcZl4/s1600/WWD11.JPG" height="200" width="150" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><b>Result 7.2!</b> oops dropped the strip.</td></tr>
</tbody></table>
<div style="text-align: left;">
<br /></div>
<div style="text-align: left;">
<br /></div>
<div style="text-align: left;">
Dropping test strips... to find Claudia follow the white strip road!</div>
<div style="text-align: left;">
Chewing test strips </div>
<div style="text-align: left;">
Used Cannula stuck to the floor</div>
<div style="text-align: left;">
Half chewed glucose tabs........</div>
<div style="text-align: left;">
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<br /></div>
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<br /></div>
<div style="text-align: left;">
<img alt="" class="spotlight" height="150" src="https://fbcdn-sphotos-c-a.akamaihd.net/hphotos-ak-xpa1/v/t1.0-9/10390054_10153228474386996_4948570264283489284_n.jpg?oh=45cd5b7ee15db8f961d2a0144ba598f4&oe=551BE6F4&__gda__=1425040610_8d0c30835be5787d9fb272ff4c994045" width="200" /></div>
<div style="text-align: left;">
<br /></div>
<div style="text-align: left;">
<b>Please share around the world the following links below:</b></div>
<div style="text-align: left;">
<br /></div>
<div style="text-align: left;">
<a href="https://www.youtube.com/watch?v=JGF8GraSxhA&feature=youtu.be">https://www.youtube.com/watch?v=JGF8GraSxhA&feature=youtu.be</a></div>
<div style="text-align: left;">
<br /></div>
<div style="text-align: left;">
<a href="https://www.youtube.com/watch?v=2el7wGf08eY" target="_blank"> https://www.youtube.com/watch?v=2el7wGf08eY</a></div>
<div style="text-align: left;">
<br /></div>
<div style="text-align: left;">
<a href="https://www.youtube.com/watch?v=8NZxUR2dFLQ">https://www.youtube.com/watch?v=8NZxUR2dFLQ</a></div>
<div style="text-align: left;">
<br /></div>
<div style="text-align: left;">
</div>
<div style="text-align: left;">
<br /></div>
<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><img alt="" class="fbPhotoImage img" height="154" id="fbPhotoImage" src="https://fbcdn-sphotos-c-a.akamaihd.net/hphotos-ak-xpf1/v/t1.0-9/p640x640/10409135_896760403682482_1127947649494609143_n.jpg?oh=12192436d4734642e2c8f4df3e8833a1&oe=54EA0725&__gda__=1425051544_5adc53794d70addc0d480d254b8c4b79" style="margin-left: auto; margin-right: auto;" width="200" /></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><h2>
It's life support that is required 24/7 </h2>
</td></tr>
</tbody></table>
<div style="text-align: left;">
</div>
<div style="text-align: center;">
<u><br /></u></div>
<u><b>For support living with Type 1 Diabetes & the latest research:</b></u><br />
<a href="http://www.jdrf.org.uk/">http://www.jdrf.org.uk/</a><br />
<u><br /></u>
<u><b>For support living with Type 1, Type 2 Diabetes, MODY etc. & research</b>:</u><br />
<a href="http://www.diabetes.org.uk/">http://www.diabetes.org.uk/</a><br />
<u><br /></u>
<u><br /></u>
<u><b>Insulin Pumps, CGM & Blood Glucose Meter Links:</b></u><br />
<br />
<a href="http://www.medtronic-diabetes.co.uk/">http://www.medtronic-diabetes.co.uk/</a><br />
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<a href="http://www.mylife-diabetescare.co.uk/mylife-omnipod-discover.html?gclid=CLKmtrKl8cECFeWWtAodpSEAuQ">http://www.mylife-diabetescare.co.uk/mylife-omnipod-discover.html?gclid=CLKmtrKl8cECFeWWtAodpSEAuQ</a><br />
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<a href="https://abbottdiabetescare.co.uk/" target="_blank"> https://abbottdiabetescare.co.uk/</a><br />
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<a href="http://www.roche.co.uk/home/products/diagnostics/patients/diabetes-patients.html">http://www.roche.co.uk/home/products/diagnostics/patients/diabetes-patients.html</a><br />
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<a href="http://animascorp.co.uk/">http://animascorp.co.uk/</a><br />
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<a href="http://www.advancedtherapeuticsuk.com/dexcom-g4">http://www.advancedtherapeuticsuk.com/dexcom-g4</a><br />
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<a href="http://cellnovo.com/">http://cellnovo.com/</a><br />
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<a href="http://www.glucomen.co.uk/">http://www.glucomen.co.uk/</a><br />
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<a href="http://www.novonordisk.com/diabetes_care/insulin_pens_and_needles/">http://www.novonordisk.com/diabetes_care/insulin_pens_and_needles/</a><br />
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5 children diabetes, coeliacs and mehttp://www.blogger.com/profile/18355214554299409897noreply@blogger.com2tag:blogger.com,1999:blog-8450229305216272723.post-84077757214733618052014-06-12T18:19:00.001+01:002014-06-13T10:04:15.832+01:00 Diabetes Awareness Week 2014<div dir="ltr" style="text-align: left;" trbidi="on">
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7th Year Of Diabetes Awareness Week. </h2>
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We have made so many fabulous friends along our journey</div>
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Our first event with Lee Nevitt in Bournemouth</h3>
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<tr><td class="tr-caption" style="text-align: center;"><b>Claudia aged 7</b></td></tr>
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<b>When Claudia was diagnosed, she was in DKA, hours away from going into a coma. Missed by our then GP. After diagnosis I was very angry for a long time. I think I was angry with myself for not realising sooner, she was so unwell. Then angry at the GP who missed it completely. Every time an article or TV show portrayed T1 Diabetes incorrectly I just hit the roof with steam coming out of my ears, followed by a rant on face book and to anyone that would listen. telephoned my husband even though he was in a meeting. The anger has faded over the years and replaced by acceptance or perhaps I can manage those emotions better. My husband may disagree. I now know I can't change anything, I can only move forward teaching Claudia to be loud and proud of who she is. <span style="color: blue; font-family: Verdana, sans-serif;">Yes I am T1, Coeliac!</span> </b><br />
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<tr><td class="tr-caption" style="text-align: center;">10 Downing Street are you listening.</td></tr>
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<b>Deep in my heart is a very sad place that I don't visit as often these days.When I do it can be very dark and lonely. It's hard to express how I feel and for people to understand. Having 5 girls and remembering my own childhood, I am very aware that Claudia has not had a carefree day since she was 7. Yes she has fun, laughs and never misses out. She can never do anything without the following..... </b><br />
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<b><span style="color: blue; font-family: Verdana, sans-serif;">To date Claudia has endured approximately:</span></b><br />
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<b>15K finger prick tests</b><br />
<b>2.5K insulin injections</b><br />
<b>600 cannula changes</b><br />
<b>30 Clinical visits</b><br />
<b>1 biopsy</b><br />
<b>Developed Thyroid Antibodies</b><br />
<b>I have lost count of bloods taken</b><br />
<b>Gluten free food</b><br />
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<b>Do I find managing Type 1 easier.... I am not convinced I do. Each year brings something new to the mix. At this moment in time I have the T1 Teen era. Interesting, challenging, frustrating and on occasions mind blowing. The beautiful Claudia has the tongue of a viper and is now too big to pick up and put her in the room, until she has finished ranting. Instead we have invested in headphones. When I ask if she will wear a CGM, she responds with DREAM ON!! The control freak in me, has taken a battering. When I ask her to test her BG she sticks her fingers in her ears and says la la la la.</b><br />
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<b>The discarding of test strips, pods and lancets has tripled. Claudia is that blatant she will drop them in front of me, along with the clothes and anything else she can just drop.</b><br />
<b>The sleepovers and school trips have increased, which have often given me sleepless nights. Especially when she calls from Wales and says, ooo I am 1.8. The funny side was a pod wouldn't stop bleeping once she had removed it, she persuaded the teacher to jump on it. I love her teachers they have been amazing. Next year will be a true test as Claudia is going to Paris.</b><br />
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<b>No one could prepare me for the gut wrenching feeling I would endure when I went back to work full time. The tearful phone calls, when her levels were not right. I was no longer 5 minutes away but at least 30. It has been a learning curve for us all. I have just secured a job locally which has lightened the heavy feeling I have often felt, when leaving for work. I have to remember that I have 4 other beautiful daughters, 1 husband (yes, only 1) and Stanley the dog. the logistics of sharing myself between them all is virtually impossible. At one point I lost who I was. Nowhere does anyone prepare you or give you the tools to manage all of the above. It's learn as you go. Oh boy, have I got it wrong on occasions. lack of sleep is not good. I have found the TV remote in the fridge, put my clothes on inside out, cried at clinic. Woken up thinking I don't remember doing a cannula change, but the evidence is scattered on the floor.</b><br />
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<tr><td class="tr-caption" style="text-align: center;">Claudia aged 13<br />
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Today we visited Salford Royal, to see if she may have Waardenburgs Syndrome. The Consultant thinks not. He feels that the grey streak in her hair and the white patches on her skin may be vitiligo but he is not 100% sure. Claudia's first question. Will you need to take blood? He replied no. Claudia said, good because you were not going to get any. I still like you at the moment. He has taken photo's and prescribed 1 cream and 1 suncream. If they have grown in 6 months time he will carry out a biopsy.</h3>
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<span style="color: blue; font-family: Verdana, sans-serif;">The last 7 years have brought:</span></h2>
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Better access to pumps</h3>
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More access to CGM's</h3>
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Wireless pumps</h3>
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Children's Tariff</h3>
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The social network has grown beyond belief</h3>
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New Legislation for Children in Schools</h3>
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Campaigns galore</h3>
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If you are living with diabetes, know someone living with diabetes or you have found my blog by accident,</div>
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<span style="color: blue; font-family: Verdana, sans-serif;">Please share these links to raise awareness:</span></h2>
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Snap shots of a day in the life of a child with Type 1</h3>
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<a href="http://www.youtube.com/watch?v=2el7wGf08eY">http://www.youtube.com/watch?v=2el7wGf08eY</a></div>
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Know the Symptoms Of Type 1 Diabetes, any age, male or female it can develop, please be aware.</h3>
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<a href="http://www.youtube.com/watch?v=8NZxUR2dFLQ">http://www.youtube.com/watch?v=8NZxUR2dFLQ</a></div>
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<span style="color: blue; font-family: Verdana, sans-serif; font-size: x-large;"> My family!<div class="separator" style="clear: both; text-align: center;">
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Each day I say a little prayer for all people living with diabetes. </h3>
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It short and sweet. </h3>
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<span style="color: blue;"> Please find a cure!</span></h2>
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5 children diabetes, coeliacs and mehttp://www.blogger.com/profile/18355214554299409897noreply@blogger.com0tag:blogger.com,1999:blog-8450229305216272723.post-46165784615869611802013-11-10T10:05:00.002+00:002013-11-10T10:05:59.346+00:00World Diabetes Day 14th November 2013<div dir="ltr" style="text-align: left;" trbidi="on">
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<span style="color: blue;">The hardest thing a parent can hear: for your child to live they will need to take medication for the rest of their life. Without this medication they will die.</span></h3>
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<span style="color: blue;">Help find a cure or help support by donating to:</span></div>
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<a href="http://www.dwed.org.uk/"><strong>www.dwed.org.uk</strong></a></div>
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<a href="http://www.diabetes.org.uk/"><strong>www.diabetes.org.uk</strong></a></div>
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<a href="http://www.jdrf.org.uk/"><strong>www.jdrf.org.uk</strong></a></div>
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<span style="color: blue;">Celebrating all the amazing people in the world who live with diabetes day in day out. Especially a huge hugs for our mini heroes, all the children living with Type 1 Diabetes.</span></h3>
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<span style="color: blue;"> Know The Symptoms Of Type 1 Diabetes Campaign</span></h2>
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<a href="https://www.youtube.com/watch?v=8NZxUR2dFLQ">https://www.youtube.com/watch?v=8NZxUR2dFLQ</a></div>
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<span style="color: blue;">This video is 18 months old, sadly the cure has still not be found. Our children continue 24/7/365 challenge of living with Type 1 Diabetes. Whilst Claudia has lot's of fun and always has a smile for everyone. People don't see the devastating side of Type 1, the tears on cannula change, the anger and frustration that can come with low or high blood sugars. It's not fair why me? Please follow the link below, watch and share.</span> </div>
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<span style="font-size: x-large;"> <span style="color: blue;">Watch out for our WDD Video. </span></span></div>
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5 children diabetes, coeliacs and mehttp://www.blogger.com/profile/18355214554299409897noreply@blogger.com2tag:blogger.com,1999:blog-8450229305216272723.post-70933870754167967892013-09-09T23:16:00.000+01:002013-09-09T23:16:23.310+01:00T1 What A Strange Life That Becomes The "Norm"<div dir="ltr" style="text-align: left;" trbidi="on">
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Sometimes I want to scream and shout and let it all out ! Such appropriate lyrics to associate with Type 1.<br />
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As a parent of a child with T1 Diabetes, I have found that diplomacy, restraint and smiling through gritted teeth have become my strong points. I have a ready prepared speech to anyone who is lacking in T1 knowledge. It covers:<br />
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The genuine I want to know more<br />
The confused T1 & T2<br />
The stunningly stupid<br />
The I have no idea what you are talking about <br />
The rare person you encounter, who actually understands and knows all about it, oh the joy!! Auto rant switch off time.<br />
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At the same time I am writing this, I am having a conversation with Claudia. <br />
It is a hypo conversation:<br />
"Mummy look my toe doesn't bend". What Claudia ? "My toes doesn't bend". Claudia you are bending your toe now. "Oh am I", followed by lots of giggling, whilst nagging me for food, which she is now trying to negotiate to a lick of cheese! <br />
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I ask myself what could I have done to prevent the hypo. <br />
So many options, free carbs, reduce her basal rate / carb ratio. Yet ultimately I know that on many occasions I have done all of the above and I still haven't prevented the hypo. After all we are trying to mimic a major organ that is influenced by some many factors, known and unknown. I have spent hours trawling through CGM & BG readings only to be non the wiser. Irritating to say the least. I usually follow it up with a huge cream cake and a cup of tea. <br />
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Whilst we have the latest technology a Medtronic Veo Pump & CGM it can become overwhelming for Claudia, having the option to "Champion Tweak" is so tempting. Often as I head towards Claudia and her pump, she will say, mum leave me alone, do you have to, for goodness sake or on a day when she has just had enough she runs off. I have to decide, do I chase after her like the mad demented T1 mother that I am. <br />
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I have just given in, she is having some cheese! Actually a huge slab.<br />
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Claudia is now 12 and we have some very honest conversations and I hope they continue. Although sometimes it can be heart breaking. It helps me understand. How do you answer the question why me mummy? I have no answer. All I can say is that we will do battle against Mr D together and it will never stop you from achieving any of your dreams.... but for goodness sake pick up your test strips and put them in the bin.<br />
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Claudia has just returned to school and is in year 8. Yes, she is soon to be a teenager. Watch this space.......<br />
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Our usual contact of text and phone calls have started. Claudia, "hi mum" you OK Claudia? "Yes, I have some new teachers". Are they taking good care of you? "Mum! I can take care of myself " So why are you calling? Huff puff and she hung up.We both get reassurance from this contact. It's strange as 5 years on I still have that sinking feeling when she is hypo/hyper if I am not near her to support. It is inevitable as she grows up Claudia will manage more and more on her own but she will always be my little girl and I will always wants to make her feel better.<br />
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Out of the blue Claudia decided that it was time she put a cannula in me and attach her spare pump. Claudia had a little panic before she inserted it, she didn't want to hurt me. It did sting for the first 24 hours and when I woke up in the morning I had to find the pump. How many times did I nearly drop it down the toilet(I didn't have a clip or pouch). It actually didn't bother me, which I found strange. It dawned on my why, in my mind and heart I knew I didn't need the pump to keep me healthy, so it didn't carry the same emotional impact. I had a choice. People living with T1 don't. I have agreed next time I will weigh all my food, carb count, bolus and take hypo treatments when required. Oh and I have to let her tweak my pump.<br />
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgYTpWd-QxJkHTMynk9XvOYS5mzwMUWMrM1wbw-9OGy0Nw12XsLd0avykqVaGnhyaejsLNagShPNifK2RjI2MsOjg_bNTJJ4zL5u12p33rgd39bq6DtQ0gQdV5ee0Jy2J7jHHl6iseXJtQ/s1600/mummy+pump_n.jpg" imageanchor="1" style="clear: left; margin-bottom: 1em; margin-left: auto; margin-right: auto;"><img border="0" height="150" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgYTpWd-QxJkHTMynk9XvOYS5mzwMUWMrM1wbw-9OGy0Nw12XsLd0avykqVaGnhyaejsLNagShPNifK2RjI2MsOjg_bNTJJ4zL5u12p33rgd39bq6DtQ0gQdV5ee0Jy2J7jHHl6iseXJtQ/s200/mummy+pump_n.jpg" width="200" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Pump Buddies for 3 Nights Only!</td></tr>
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5 children diabetes, coeliacs and mehttp://www.blogger.com/profile/18355214554299409897noreply@blogger.com1tag:blogger.com,1999:blog-8450229305216272723.post-51843688700924218612013-08-10T19:35:00.001+01:002013-08-10T20:28:40.857+01:00Type 1 Be Proud And Be Heard!<div dir="ltr" style="text-align: left;" trbidi="on">
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We have come along way in a few months. Loud, proud and own being Type 1.</h3>
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Own it & Show it<br />
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhUaZJllxRvCngnL0zS9a3Df7S2w7CnktbvuYiaH3JV2dcqDv6vC7vD43z_rNdiCHBAt_ucCZU-WEjcZuFCWvnw0SeSvyCyaJRt5pzHHJRgfFXiFAGxhWHJdl3MDUnrejTpz6qzYS1Iqyo/s1600/PumpredIMG_0385.JPG" imageanchor="1" style="clear: left; margin-bottom: 1em; margin-left: auto; margin-right: auto;"><img border="0" height="200" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhUaZJllxRvCngnL0zS9a3Df7S2w7CnktbvuYiaH3JV2dcqDv6vC7vD43z_rNdiCHBAt_ucCZU-WEjcZuFCWvnw0SeSvyCyaJRt5pzHHJRgfFXiFAGxhWHJdl3MDUnrejTpz6qzYS1Iqyo/s200/PumpredIMG_0385.JPG" width="133" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Proud & Party in Style</td></tr>
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If you have read my previous post you will know we had hit the delightful T1 rocky road and Claudia was finding life very challenging. It was a devastating time watching 1 of our daughters struggle to manage her emotions and medical condition. We have shared tears, laughter and anger. <br />
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In July we attended clinic. It was a huge relief to have a HbA1c of 6.5%. If only it was as simple as that. We are still waiting to be seen by CAMHs, yes 5 months on, we are still on a waiting list with no appointment in sight. <br />
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I look back and wonder how have we managed to turn this around? The big question, have we turned the corner and jumped back on the right path? Only time will tell, I am not a nurse or child psychologist. I am an everyday mum who was thrown into the turbulent life of Type 1.We also have to keep in mind we have 4 other daughters who need our attention, understanding and love. This can be difficult on occasions.<br />
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As my wonderful husband told the team it has been exceptionally hard work. Lot's of listening and understanding. To be honest sometimes I didn't understand. Ultimately I don't know how Claudia feels as I am not Type 1 & Coeliac. We have agreed an action plan and I have accepted that Claudia at the age of 12, needs to have more say in how she manages her daily routine. I was laughing to myself when clinic told Claudia she was testing her blood glucose too much. Claudia challenged the Consultant and said no I am not. It was a landmark day, Claudia may have been testing in their opinion too much, however this is what Claudia needs to do currently. We have to listen and understand why or just accept on some occasions, in order to support.<br />
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Message to Clinician's you may not agree, you may have other thoughts, however listen to the people living the life. They are not a statistic, they have feelings and thoughts and ultimately it's their body. Guidance is good but constant criticism and striving for perfection with such a complex condition is not healthy. In my opinion Mental Wellbeing is as vital as having a health body. 1 compliments the other.<br />
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I have to thank my friends in the T1 community who have supported me and reassured me that what Claudia was going through was "part of the T1 journey" and growing up. <br />
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgum5VJL4ETWRfSQ5T5Nv4nm_jGqtw7rsS84QLyuElfVbGZdJpg84O_yHzpelKPzgi5IAUNoZpfZ1xoREr9yfkYNQdORxcTzqputeqckrKxEtTeDAKnN-1BR_-gsrhuQMRvqFwaEdPAYxI/s1600/rainbow-431x300.jpg" imageanchor="1" style="clear: left; margin-bottom: 1em; margin-left: auto; margin-right: auto;"><img border="0" height="138" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgum5VJL4ETWRfSQ5T5Nv4nm_jGqtw7rsS84QLyuElfVbGZdJpg84O_yHzpelKPzgi5IAUNoZpfZ1xoREr9yfkYNQdORxcTzqputeqckrKxEtTeDAKnN-1BR_-gsrhuQMRvqFwaEdPAYxI/s200/rainbow-431x300.jpg" width="200" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Don't say it..... Zip it......</td></tr>
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The first week of the summer holidays we spent surfing in Cornwall. Insulin pump, sand and water not a brilliant combination. I have to say we didn't have to do any extra cannula changes. It's at times like this I wish I was like zippy off rainbow. How many times did I open my mouth, but then realised that she just needed to have fun. <br />
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Claudia made some friends, at first they didn't ask any question's about her pump, even though they kept looking at it. As the days went by they asked more and more questions and were really interested and Claudia told them all about carb counting, insulin etc.<br />
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiSaRzN3vFDy52I-zHOwe8qcTHzwxfWJczCqaUIxi8p4yS96OOR6O2sNosl_SYzL6i37MXug4ZW135Nd2YtMfvuicdElRcTSkW-fx5RrA0Z3nqYKedFikBgVmMl-C-LYDCtGGBh5eEnjtE/s1600/IMG_0534.jpg" imageanchor="1" style="clear: left; margin-bottom: 1em; margin-left: auto; margin-right: auto;"><img border="0" height="133" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiSaRzN3vFDy52I-zHOwe8qcTHzwxfWJczCqaUIxi8p4yS96OOR6O2sNosl_SYzL6i37MXug4ZW135Nd2YtMfvuicdElRcTSkW-fx5RrA0Z3nqYKedFikBgVmMl-C-LYDCtGGBh5eEnjtE/s200/IMG_0534.jpg" width="200" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Claudia left, with her new friends.</td></tr>
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Claudia loved surfing and spent hours in the water. Yes I did go surfing! Yes my husband did film it!<br />
We had an amazing holiday but very different as Claudia was in control, even saying if she wanted her CGM on. Deep breathing from me required. It has played havoc with my OCD diabetes and the <br />
fact I am such a control freak! ahhhh........ <br />
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEidfSbkysS7AtsPWYs-oR6rOPkekCauvESkgKk2wXDckR8mv7Ncxvm8KYvnURijV1EcCP0Ow32Fj6XVBBcVu-T2ufNh5O7RLsCiejjfyZ1LKKIZ4aJSqCGKQMsiezJeoTNQHEPzoHvbtKk/s1600/IMG_0301.jpg" imageanchor="1" style="clear: left; margin-bottom: 1em; margin-left: auto; margin-right: auto;"><img border="0" height="133" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEidfSbkysS7AtsPWYs-oR6rOPkekCauvESkgKk2wXDckR8mv7Ncxvm8KYvnURijV1EcCP0Ow32Fj6XVBBcVu-T2ufNh5O7RLsCiejjfyZ1LKKIZ4aJSqCGKQMsiezJeoTNQHEPzoHvbtKk/s200/IMG_0301.jpg" width="200" /></a><br />
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<tr><td class="tr-caption" style="text-align: center;">Bay Watch UK.</td></tr>
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How many times did I have a little panic(huge, massive panic), whilst she was surfing and running round wild? Far too many, sadly that is our "normal" everyday life now. I just have to visit the hairdressers more often to cover the grey.<br />
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As I am writing this I am thinking about packing, we are going to Cardiff tomorrow for a week. My head is on T1 overload thinking of every eventuality, funny in some respects as we are only going to Cardiff. I am researching gluten free restaurants/cafe's in the area. The top box will be full of T1 & Coeliac necessities. I will have enough stuff to open a shop on the side of the road.<br />
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This is the first time I have worked full time and managed 5 children during the summer holidays. It's been just plain mad, mad, bonkers. I have to thank my niece for helping and Julie my friend. Donald my husband has tried to work from home and look after the girls without success due to the noise levels. As I left for work the other morning, there were 2 body boards hanging from the tree, the swing had been made into a den, I had to dodge various, scooters and bikes. I thought the girls imaginations are great but they make such a mess. Then as I opened the gate I heard this screech I am 9.8 I am putting a correction in. Ok I said and jumped into the peaceful bliss of my car and went to work. Leaving the chaos behind.<br />
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Hello to anyone in the Cardiff area, take cover as the Allison's are arriving tomorrow! If you can't see us I am sure you will hear us.<br />
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5 children diabetes, coeliacs and mehttp://www.blogger.com/profile/18355214554299409897noreply@blogger.com8tag:blogger.com,1999:blog-8450229305216272723.post-19944659542934948932013-05-27T22:21:00.001+01:002013-05-27T23:02:22.937+01:00We Have Hit The Type 1 Rocky Road!! <div dir="ltr" style="text-align: left;" trbidi="on">
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEghvkNiXtAxLCiUFbUunJyH9CX0G_NOR5q18r9_7UXE03uuLL96wRjqynJHgoNEbTjxOVjDJ8zmlLUMKjILN_p5iW026pl2z_f1mDKrpPjX1xho161GX4RHvRGq6R2_A69Ltd0MNYojmwg/s1600/blog4.jpg" imageanchor="1" style="clear: left; margin-bottom: 1em; margin-left: auto; margin-right: auto;"><img border="0" height="200" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEghvkNiXtAxLCiUFbUunJyH9CX0G_NOR5q18r9_7UXE03uuLL96wRjqynJHgoNEbTjxOVjDJ8zmlLUMKjILN_p5iW026pl2z_f1mDKrpPjX1xho161GX4RHvRGq6R2_A69Ltd0MNYojmwg/s200/blog4.jpg" width="143" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Claudia aged 7 Type1</td></tr>
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This has got to be the hardest blog that I have ever had to write.</h3>
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Claudia has been diagnosed Type 1 and Coeliac for over 5 years. We know her thyroid is on it's way out too. She has a white/grey streak in her hair which they believe is linked to Waardenburgs Syndrome, still not confirmed or fully explained. <br />
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<tr><td class="tr-caption" style="text-align: center;">Claudia's first day at High School.</td></tr>
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In September 2012 Claudia started High School and I went back to work full time. Not ideal I know. In the current financial climate with 5 children we needed another income. At parents evening, Claudia had glowing reports from everyone of her teachers and a letter home saying she was near the top of her set. <br />
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In October 2012 we attended clinic, Claudia's HbA1c was 6.5%. Which was expected.<br />
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In December 2012 we attended clinic, Claudia Hba1c was 7% this time. At this appointment it was notated that Claudia had lost weight, she was always hungry. I raised my concerns that I didn't think Claudia was OK, as she was constantly tired and looked unwell. I just couldn't put my finger on it, but in my heart I knew all was not well.<br />
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Clinic said not to worry,as her HbA1c was fab and they took some bloods to check her thyroid function.<br />
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<u><strong>January 2013:</strong> </u><br />
I had constant phone calls and texts from Claudia saying she was hypo and felt rotten. So I reduced her basal progressively with the support of our clinic.By the end of January Claudia was down to 4 units of basal insulin in 24 hours. I checked her BG meter and the readings that she had given me were correct her CGM was also confirming the information. The only thing that was questioned was there were BG readings carried out within minutes of each other. Claudia just said, "oh I didn't wash my hands properly". We had no reason to not believe her, as sometimes this can happen if they are she is in a rush. <br />
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<strong>January 2013</strong> Claudia was admitted to hospital to check for Addisons Disease and a full blood screen. All came back negative/ok apart from the thyroid, which was expected. Whilst in hospital, she didn't have any hypo's and her levels were fine.<br />
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We were discharged non the wiser. I just knew something wasn't right but I had no idea what was wrong. I was really worried.We went home and Claudia went back to school and I went back to work. The hypo's started again but not as often and I gradually increased her insulin once again. <br />
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We attended clinic again in March 2013. Donald took Claudia as I had to work. Claudia was unhappy as she prefers me to attend clinic with her. I sent Donald with a huge list of concerns as I was very worried, Claudia had lost more weight, she looked tired, pale and was really moody!! Donald actually gave the team the iPad to read as it was such an epic.....<br />
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<strong><u>After 5 years of HbA1c's between 6.1 and 7.4, wait for it 10.6!</u></strong> <br />
Claudia was hysterical for several hours, the team were confused.It just didn't make sense as her CGM reading and the readings from her BG meter told a different story. Claudia was sent to have further bloods taken. I had this news via text, I felt sick and cried. In fact I was hysterical, thank goodness I don't share an office. Something wasn't right but I didn't know what. It brought back the day she was diagnosed, when she was so ill and I thought she was going to die.I had those feelings again.it's not a place I thought I would ever visit again.<br />
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After the initial shock, and I had calmed down. I began thinking, this just doesn't make sense. When I got home from work I had a long chat with Claudia, who was still hysterical and saying the HbA1c was wrong. The machine was wrong. I asked her if there was anything she wanted to tell me and if she did anything that might not be ok, if you had Type 1 Diabetes. Claudia was very angry and said no. I had no reason to doubt her as she had always been very responsible and mature above her years when managing her Diabetes and Coeliac diet. <br />
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That night Claudia slept in my bed. I didn't sleep as I checked Claudia every hour. I felt sick I didn't know what was happening. The next morning Claudia went to school and I went to work, in truth I just felt sick and was very worried. <br />
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It was complete coincidence that I had ordered 2 new meters for Claudia. I decided to start using 1. When I got back from work I decided to check Claudia's meter. Claudia had been with her friends as school had finished at lunch time for Easter. I looked and thought gosh that's a huge difference. Her BG's went from 1.1 to 16.5 !!!, 2.2 to 12 etc. I shouted for Claudia to come down. I started to question why such differences, she got very animated, angry and started to cry. At that point I knew I had uncovered something but not sure what....... and I certainly wasn't prepared for what she had been doing and why.<br />
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<strong><u>Claudia had been:</u></strong><br />
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Claudia had been deliberately falsifying her readings by, leaving her hands wet. This gives an artificially low reading. <br />
Applying pressure to her CGM which alters it's accuracy.<br />
Claudia had been taking glucose,on purpose when she didn't need too. <br />
Claudia had been pulling her cannula's out deliberately and so much more.... <br />
<strong>I have promised Claudia I wouldn't blog everything.</strong><br />
Impressive in a very tragic way as her Diva had out smarted the Clinical Team and me for months and discovered ways of cheating that had never even occurred to me.<br />
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Why I asked, why Claudia, don't you know you are damaging your body and making yourself ill.<br />
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<strong><u>Claudia's response:</u></strong><br />
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You have have gone back to work and left me.<br />
It scares me when you are so far away. <br />
I even pulled my cannula out and you didn't come and put it back in. I had to do it myself. <br />
You are not there to collect me from school anymore. <br />
I am just scared when you are not close, I need you at home.<br />
You don't always come to clinic, you let daddy take me.<br />
I hate diabetes and I hate you working. <br />
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<strong><u>Looking back I can now see the tell tale signs: </u></strong><br />
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Cannula's coming out on a regular basis.(never happened before High School)<br />
Lost blood glucose meter's.<br />
Watery blood drips in the bathroom.<br />
Several low BG readings within minutes of each other<br />
Increased Diva episodes !!!!!!!<br />
Constant marks/scratches on her forehead and scalp.<br />
Huge quantities of glucose tablets being consumed.<br />
She was reluctant to show us her meter.<br />
CGM failing on a regular basis and being pulled out.<br />
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How did I miss all the warning signs? What could I do to make her feel better again and stop her from harming herself. I felt like the worst mother in the world, how could I have got is so wrong. Had I been to strict with her management of Type 1 and Coeliac?<br />
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Claudia is now attending clinic once a month. In 4 weeks her HbA1c has come down to 8. Claudia has seen a psychologist and talks to the school chaplain. I feel totally drained but Claudia is looking much healthier and coping very well. I have to carry out spot checks to ensure she isn't "false testing" again. It is going to be a long rocky road but I am determined that we will win the Type 1 emotional battle. No-one told me how hard this would be, mum, nurse, psychologist, friend all rolled into one.<br />
We have put realistic goals in place and targets to work towards. From diagnosis everyone has always said, "you will never have any problems with Claudia, she is so grown up and responsible". This keeps echoing in my mind. <br />
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I have been that numb and in shock that I haven't been able to cry. That's a really strange feeling.<br />
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<strong>Sharleen Spiteri - All the times I have cried</strong>, is a song that is very close as it was released in 2008 when we had news Claudia had been awarded a pump. It was such a relief I cried and this song was playing. For the first time in my life I am just numb and it's heartbreaking.<br />
<a href="https://www.youtube.com/watch?v=pUtnQTzimMw">https://www.youtube.com/watch?v=pUtnQTzimMw</a><br />
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Everyday I have to carry on with a smile, pretending that everything is fine. In reality my emotions are in a constant whirl. Not only have I got 4 other children who need me but a husband, not forgetting work. I often wonder how everyone living with Type 1 or caring for someone with Type 1 hold it all together. I am there by the skin of my teeth currently.<br />
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<tr><td class="tr-caption" style="text-align: center;">Claudia looking a lot happier and healthier May 2013</td></tr>
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5 children diabetes, coeliacs and mehttp://www.blogger.com/profile/18355214554299409897noreply@blogger.com8tag:blogger.com,1999:blog-8450229305216272723.post-3576912210362972312012-12-30T16:34:00.000+00:002012-12-30T21:36:26.983+00:00Goodbye 2012<div dir="ltr" style="text-align: left;" trbidi="on">
<span style="font-size: large;">Goodbye 2012!</span><br />
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<tr><td class="tr-caption" style="text-align: center;">Add Type 1, Coeliac & Dsylexia, life can be wild!</td></tr>
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2012 has been a challenging year in many ways. I sometimes wonder how I get through each day on so little sleep. Whilst I always have a smile for everyone I have found as the girls have got older, life is even more demanding. Keeping a 4, 6, 7, 11 & 14 year old happy, healthy and on the right track is mind blowing. Add a husband and often there is no time for me. All school reports were wonderful, so I must be getting some thing right.</div>
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On a more positive note Bella aged 14 is now 5ft yes!! Having coeliac undiagnosed for so many years has really affected her growth. Having the odd teenage rebellion gluten party hasn't really helped. Bella is due to go back in 6 months for a joint endo/gastro appointment. The Consultant's want to do a fasting glucose and some further bloods. </div>
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Darcy now has an individual education plan in place and her reading has dramatically improved.Her writing has improved but in reality we have a huge amount of work ahead of us. Darcy was diagnosed with Dyslexia in April 2012. I have had to learn so much in order to support Darcy. Her new teacher has been truly inspirational. </div>
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Felicity is flying and reading several years above her age. Sometimes I have to remember I am talking to a 6 year old. Felicity is always planning some kind of mischief. How siblings are so different.</div>
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Purdey is growing up so fast and will start school in September 2013. Purdey was born the year Claudia was diagnosed. Great sadness and joy all in 1 year. I think hand on heart I am still recovering from 2008. Purdey is full of character and is always giggling. </div>
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The week before Christmas Claudia pulled her cannula out. She called me crying. I was at work and a 30 minute drive away. She said that she couldn't put a cannula in and hung up on me. I felt like the worst mother in the world and completely useless. I called back and a very tearful Claudia had managed to put her cannula in her arm of all places. A teacher was with her but had no idea what to do. I was very proud, sadly part of me felt I had let her down as she shouldn't have all these worries at the age of 11. In some respects I am glad the teacher witnessed the tears and upset as often they only see our children when they are "Ok" they don't see what happens "behind the scenes". Needless to say I got fleeced for a red sparkly watch by Claudia not the teacher.!</div>
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We went out for Christmas Lunch this year. How "out there" have Claudia and I become. We did a full cannula change at the table and even negotiated where the cannula was going to be placed without too many hysterics. Good in many respects as I never want Claudia to feel embarrassed about living and managing Type 1. Then came the heart felt sigh when I looked around and saw all the other children and families just tucking in to lunch, whilst we calculated how many carbs, took into account excitement etc. In the end we just stuck our finger in the air and hoped for the best!! I had a Bucks Fizz to compensate as having Type 1 OCD makes guessing carbs a little stressful.</div>
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Claudia had decided she wanted a break from her CGM, another deep breath for me. Claudia is 11 and as you would expect she wants more and more of a say in how she manages her condition.........</div>
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One of my dearest friends posted last night, he has been suffering from "high blood sugar" as he stated carb counting, calculating correctly yet nothing was bringing his levels down. What touched my heart and echoed what Claudia had said yesterday. Just 1 meal without calculating, having to think, weigh would be wonderful. </div>
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Whilst I am not Type 1, I so understand as Claudia had a mini rant in a restaurant as I unwittingly asked her to check her BG. She flounced off to the toilet to wash her hands shouting, why can't I just eat a meal, just 1 without all this fuss!! </div>
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Type 1 is so very complex and people often think that it all associated with food. In reality that is just a tiny part of controlling/managing Type 1 as so many other factors influence blood glucose levels:</div>
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Everyday Life Basically!</h2>
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Every New Year since Claudia has been diagnosed I pray for a cure. I want my little girl to have carefree teen years. People say, Claudia is always happy and has a fantastic time. She is really responsible. All the above is true, however Claudia shouldn't have so many worries at the age of 11.That's what people often forget.</div>
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<span style="color: blue;">For anyone who doesn't fully understand Type 1 Diabetes. Claudia needs insulin each and everyday to keep her alive. Even with insulin keeping her healthy is a daily challenge. Achieving "good control" a very subjective statement is like dancing with the Devil and requires 24/7 input from Claudia and myself.</span></div>
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<strong>From the bottom of my heart I would like to thank all my friends who have made me smile when I often feel like crying. Who listen when I am on a rant because I am just so frustrated with Type 1 and how life can be unfair and unkind.</strong> </div>
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Wishing you all Magical 2013.</h2>
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<tr><td class="tr-caption" style="text-align: center;">Claudia just before she was diagnosed, maybe 2013 will be the year our carefree days will be returned. Always remain hopeful!</td></tr>
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5 children diabetes, coeliacs and mehttp://www.blogger.com/profile/18355214554299409897noreply@blogger.com10tag:blogger.com,1999:blog-8450229305216272723.post-30098235094005427512012-12-12T22:45:00.001+00:002012-12-12T22:46:45.213+00:00Clinic:The Good,The Sad And The Embarrassing Texts<div dir="ltr" style="text-align: left;" trbidi="on">
How the months fly by. Today we were at clinic in Leeds. For the first time in 2 years I didn't get lost, phew! I am always anxious even though I know we have really tried and worked relentlessly to maintain"good control". It's exhausting and non-stop. I need to kick the habit of taking pictures of good BG levels. Although I know I am not alone. It's those small victories that keep me going.<br />
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It's been a time of change: Claudia started High School in September. At Primary School we were lucky and had 1-1 care. In by opinion every child should have 1-1 care if required. So Claudia went from pampered T1 care to DIY Type 1 care.<br />
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I have recently started working full time. On many occasions I have been close to tears as I felt the expectations of Claudia are far to high, she is still my little girl. Yet we have no choice with Type 1 and the start of High School as Claudia's future health is so important. Letting Claudia grow up and have more control has been really challenging for me. It's a mother's instinct to protect or in my case overprotect. <br />
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True to form Claudia was in full ear chewing mode during the journey whilst applying lip gloss on a regular basis. I raised an eyebrow and Claudia responds with "it makes my lips all sparkly" Mmmm is that my lip gloss Claudia?<br />
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We arrived at clinic. The usual height, weight Hba1c etc followed. HbA1c 7 result!! as Claudia has taken on the management of Type 1 since September. We were all having a chat, Consultant, DSN Claudia and I. Claudia suddenly chirps up "Do you know how many times my mummy has text me since September?" The room fell silent. Claudia got out her phone and announces 549 times. I hang my head in shame. A mother has to track her T1 lovely somehow.<br />
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<tr><td class="tr-caption" style="text-align: center;">Oh yes !!!</td></tr>
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Claudia had some further bloods to check her thyroid function. Claudia really doesn't like having her blood taken. So obviously I had to bribe her. I always get fleeced after clinic.<br />
Hopefully we will have the results in a week or so. It was back in May of this year that her annual bloods flagged up there were "thyroid antibodies" although it was functioning.These bloods will indicate if there is any change and if she will require Thyroxine or similar. I am praying for a miracle as Claudia is already Type 1 and Coeliac.<br />
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I had to hold back the tears in the car when Claudia said " mummy all I want for Christmas is not to have diabetes on Christmas Day and just eat and eat without bolusing". My response "Claudia I am good but not that good". In true Claudia style she continued well mummy if I had a fairy godmother I would ask her to wave her magic wand and take my diabetes away. So glad I had my sunglasses on. <br />
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I am glad she can be honest with me, yet at the same time, it's these truly honest moments that make my cry or my heart feels heavy. On many occasions when she is hypo, she still has a smile for everyone. Darcy 1 of her younger sisters is giving her glucose whilst she is sat down. I have yet to capture on film her in Diva Mode whilst hypo.<br />
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjBllKdIm6mzQnTEhGR_QZZ4yFaRiDoX2WjPpgl1HvYNCs2zo4ScY47l2wzFGMT6Adn492T_dT5jg0K1dPZ0W50GyXXD32CbXsBapaJ3CvfXzUQww4Pqs-YnIlxpuCPcK_wwyntQbDH0CY/s1600/yes.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="200" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjBllKdIm6mzQnTEhGR_QZZ4yFaRiDoX2WjPpgl1HvYNCs2zo4ScY47l2wzFGMT6Adn492T_dT5jg0K1dPZ0W50GyXXD32CbXsBapaJ3CvfXzUQww4Pqs-YnIlxpuCPcK_wwyntQbDH0CY/s200/yes.JPG" width="150" /></a><br />
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Darcy helping Claudia whilst hypo. <br />
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5 children diabetes, coeliacs and mehttp://www.blogger.com/profile/18355214554299409897noreply@blogger.com2tag:blogger.com,1999:blog-8450229305216272723.post-85203099790286931372012-11-25T18:33:00.000+00:002012-11-25T21:38:44.643+00:00Type 1 Friendship A Special Bond<div dir="ltr" style="text-align: left;" trbidi="on">
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<span style="mso-ansi-language: EN-GB;"><span style="font-family: Cambria;">On my constant mission to understand the world that is Type 1 Diabetes. I have met some truly special people and made friendships that I know will be lifelong. </span></span></div>
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<span style="mso-ansi-language: EN-GB;"><span style="font-family: Cambria;">This summer I met Sheldon, our common interest Type 1 Diabetes. I have to say that on occasions I suffer from "Diabetes Overload". Sheldon was I welcome breath of fresh air and made me realise that it was onwards and upwards with the battle of getting Type 1 Diabetes recognised and understood by the wider public and medical profession. </span></span></div>
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<span style="mso-ansi-language: EN-GB;"><span style="font-family: Cambria;">The question: How can we help support each other more on a day to day basis? What applications are out there or are currently being developed to support everyday life with Diabetes? We need quality of life every day until a cure is found. Sheldon discussed an application that he was developing in order to help improve, understand and support daily living with Type 1 Diabetes. What was new/different about this application for diabetes management? Sheldon has a young son with Type 1 Diabetes. They are "living the Type 1 life" every day. To me that makes all the difference. </span></span></div>
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<span style="mso-ansi-language: EN-GB;"><span style="font-family: Cambria;"><strong>An application written and developed with a "true" understanding of Diabetes.</strong> </span></span></div>
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<span style="mso-ansi-language: EN-GB;">Every1Everywhere Diabetes </span></h2>
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<span style="mso-ansi-language: EN-GB;"><span style="font-family: Cambria;">I started
Every1Everywhere Diabetes Management six months ago. We are designing and
testing a system I built for our son’s blood sugar management. He is 3 and was
diagnosed with Type 1 two years ago. This system radically reduces his blood
sugar extremes and gives us really tight blood control. Not perfect, but
better. And better is always what we are after.<o:p></o:p></span></span></div>
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<span style="mso-ansi-language: EN-GB;"><span style="font-family: Cambria;">We are working hard to
produce a tool that will change the culture of diabetes management. You will
see what that means if you are paying attention over the coming months. :)<o:p></o:p></span></span></div>
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<span style="mso-ansi-language: EN-GB;"><span style="font-family: Cambria;">Diabetes Power came
onto my radar in the summer. Was impressed with how well Angela’s daughter,
Claudia, took control of her blood sugar management. I was also impressed with
Angela’s own enthusiasm and tenacity.<o:p></o:p></span></span></div>
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<span style="mso-ansi-language: EN-GB;"><span style="font-family: Cambria;">So we decided to put
together a series of three charity dinners where we invite as many friends as
we can fit around our table and put on a spectacular dinner for them. The first
gathering was landscape-themed where 24 people enjoyed an eight-course meal,
punctuated by wild and exotic sorbets to cleanse the palette. Wines were
hand-selected to go with the culinary delights provided for our
good friends. <o:p></o:p></span></span></div>
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<span style="mso-ansi-language: EN-GB;"><span style="font-family: Cambria;">Robyn Perkins, with an
amazing team of 4, laid waste to our humble kitchen bringing such fun to the
evening. They are as much about ‘cooking as theatre’ as they are about
preparing great </span></span><span style="mso-ansi-language: EN-GB;"><span style="font-family: Cambria;">food.</span></span></div>
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<tr><td class="tr-caption" style="text-align: center;"><span style="font-family: Cambria;"> The Aftermath</span></td></tr>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgjk8hC0j5gGQNKQixJwOP8hSi7xd4RfAq-NVguBzRCcpXaKC1r7F_QATvV8i5Z-PcMTt6D3T_80v12edDFZI9qgJ2PoNuAHASQUZfU_dZPFUwgleL-OjpfgtUQ8YKI8zQK5bg9uIAPQnM/s1600/sheldon1.png" imageanchor="1" style="clear: left; margin-bottom: 1em; margin-left: auto; margin-right: auto;"><img border="0" height="200" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgjk8hC0j5gGQNKQixJwOP8hSi7xd4RfAq-NVguBzRCcpXaKC1r7F_QATvV8i5Z-PcMTt6D3T_80v12edDFZI9qgJ2PoNuAHASQUZfU_dZPFUwgleL-OjpfgtUQ8YKI8zQK5bg9uIAPQnM/s200/sheldon1.png" width="150" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><span style="font-family: Cambria;">One of eight courses</span></td></tr>
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<tr><td class="tr-caption" style="text-align: center;"><span style="font-family: Cambria;">The team</span></td></tr>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhyzNgHyix5i89utmPDo18PfbODdgA2ekb8g0a3twVxx3Y7-x_FjPLcDBGemuK1rqDA-FTIIWoelL1qZD6n30YKbifAuQimPaMXVfFxoARuUxuaOtM7jG6b9RHo4fM1dM1CMdkN9wOwNRQ/s1600/sheldon3.png" imageanchor="1" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"></a><span style="mso-ansi-language: EN-GB;"><span style="font-family: Cambria;"></span></span><br />
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<span style="mso-ansi-language: EN-GB;"><span style="font-family: Cambria;"></span></span><br />
<span style="mso-ansi-language: EN-GB;"><span style="font-family: Cambria;">Equally, the second dinner was a roaring success!Alexandra was looking for an idea to name the courses and I have always wanted an over sized Beatles poster in our living room</span></span><br />
<span style="mso-ansi-language: EN-GB;"><span style="font-family: Cambria;">(who wouldn’t?), so the Beatles theme was born and the fabulous courses were </span></span><br />
<span style="mso-ansi-language: EN-GB;"><span style="font-family: Cambria;">christened with titles for salad like ‘Strawberry Fields Forever’ and soup, ‘Cayenne’.</span></span><br />
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<span style="mso-ansi-language: EN-GB;"><span style="font-family: Cambria;">Mirja Hartwig, Head
Chef at the legendary Café Kick donated wine for the evening </span></span><br />
<span style="mso-ansi-language: EN-GB;"><span style="font-family: Cambria;">and brought her
expertise for the amazing meal. Both times those guys at the Butcher on
Theobold’s Road gave us amazing deals on some spectacular beef in support of
the cause.</span></span></div>
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<span style="mso-ansi-language: EN-GB;"><span style="font-family: Cambria;"><o:p><strong>Waiting for the evening to begin with Mirja and Edward</strong></o:p></span></span></div>
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<span style="mso-ansi-language: EN-GB;"><span style="font-family: Cambria;">It has been such fun
bringing great groups of people together to enjoy a fantastic evening. </span></span><span style="mso-ansi-language: EN-GB;"><span style="font-family: Cambria;"><strong>We
raised £750 for Diabetes Power</strong> and are looking forward to our final dinner in January
where we will attempt to pull out all the stops again and fill our flat to the
brim. We have live music planned and anticipate a sensational evening of food,
wine and song.<o:p></o:p></span></span></div>
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<span style="mso-ansi-language: EN-GB;">Every1Everywhere:</span></h2>
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<span style="mso-ansi-language: EN-GB;"><span style="font-family: Cambria;"><strong>Is a
new kind of company. We are working to make people’s lives better – both,
officially through our diabetes management system, and unofficially by bridging
our personal goals with those of amazing people we run into who work tirelessly
to make better the lives of those living with diabetes.<o:p></o:p></strong></span></span></div>
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<span style="mso-ansi-language: EN-GB;"><span style="font-family: Cambria;">Sheldon</span></span><br />
<span style="font-family: Cambria;"></span><br />
<span style="font-family: Cambria;">For further information, please visit:</span></div>
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http:// <a href="http://www.every1everywhere.org/">www.every1everywhere.org</a></h3>
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5 children diabetes, coeliacs and mehttp://www.blogger.com/profile/18355214554299409897noreply@blogger.com0tag:blogger.com,1999:blog-8450229305216272723.post-38757609521680207962012-11-18T19:54:00.001+00:002012-11-18T19:54:18.680+00:00A Simple Way To Carry Basic Type 1 Information<div dir="ltr" style="text-align: left;" trbidi="on">
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Type 1 Tags. </h2>
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Simple basic information to help support a child/young person or adult.</div>
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The top card carries the universal "medical alert symbol" and a strip to write "ICE" information </div>
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(in case of an emergency).</div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi2YrtB5fS_kL7oKPl4ETJwxKwQXCCwBzpjYlf_fvREx3Sej3H5sPqqAsAsupmknDEb8Eoe2_QTSLNnCozzYmmwmgn361PfkBWeQ-YL6W18Aqp_mlD9QkclFdP-1g-_tlm-68gl5F1d4Ks/s1600/Tagpicture.png" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="640" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi2YrtB5fS_kL7oKPl4ETJwxKwQXCCwBzpjYlf_fvREx3Sej3H5sPqqAsAsupmknDEb8Eoe2_QTSLNnCozzYmmwmgn361PfkBWeQ-YL6W18Aqp_mlD9QkclFdP-1g-_tlm-68gl5F1d4Ks/s640/Tagpicture.png" width="452" /></a></div>
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A simple easy to read resource to complement a care plan or just a gentle reminder for support/education staff or employers to help support people living with Type 1 Diabetes.There are 3 cards printed on both sides. They are made from "plastic" and come attached to a looped key ring for added versatility. You can attach the cards to a bag, pencil case, trouser/skirt loop, medical bag or you can use the looped key ring to hang the T1 Tag.<br />
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<strong><span style="color: blue;">The tags are priced at £4.99</span></strong><br />
<strong><span style="color: blue;">UK shipping free </span></strong><br />
<strong><span style="color: blue;">Worldwide shipping £1.50</span></strong><br />
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To order follow the link below and click on T1 Tags on the "left side": <br />
<a href="http://www.diabetespower.org.uk/index.php">http://www.diabetespower.org.uk/index.php</a><br />
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5 children diabetes, coeliacs and mehttp://www.blogger.com/profile/18355214554299409897noreply@blogger.com1tag:blogger.com,1999:blog-8450229305216272723.post-64743504762813921162012-11-04T18:19:00.000+00:002012-11-04T18:28:50.505+00:00World Diabetes Day 14th November 2012<div dir="ltr" style="text-align: left;" trbidi="on">
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<span style="background-color: white; color: blue;">It's November and perhaps a time when the"Diabetic"community unite all around the world.</span> </h3>
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<span style="color: blue;">As we light up Blue what will you be doing ?</span> </h3>
<span style="color: #6fa8dc;">Claudia will have been diagnosed 5 years in 2013. I often wonder where the last 4 years have gone. I have to say I do pray each day for a cure. We have our good days and not so good days. Winter I find more challenging as we dodge the sickness bugs, colds and flu. The Diva Claudia has picked up a cough from Purdey, needless to say we have had some interesting blood glucose levels over the last few days with impressive behaviour to match! (take Cover) </span><br />
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<span style="color: #6fa8dc;">Last year I cycled 155 miles from Portsmouth Diabetes Centre to Birmingham NEC. It was tough and the hills...................... just kept on appearing. I only fell into a hedge once. Of course it had to be a blackberry bush. Ouch. So guess what? Out of shear stupidity on my behalf I agreed to cycle again.</span><br />
<span style="color: #6fa8dc;"> </span><br />
<span style="color: #6fa8dc;">Am I fit ... No</span><br />
<span style="color: #6fa8dc;">Have a practised enough... No (Loz is going to tell me off!!!)</span><br />
<span style="color: #6fa8dc;">Am I looking forward to the hills... No</span><br />
<span style="color: #6fa8dc;">Will it hurt.... Yes</span><br />
<span style="color: #6fa8dc;">Will it be fun....... oh yes</span><br />
<span style="color: #6fa8dc;">This year as I am working I have booked the 2 days as holiday. Work think I am nuts.</span><br />
<span style="color: #6fa8dc;"> </span><br />
<span style="color: #6fa8dc;">If you would like to meet us or join us on our journey please do!!!</span> <br />
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<tr><td class="tr-caption" style="text-align: center;">Raising Awareness Of Type 1 !!<br />
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<a href="http://www.diabetespower.org.uk/index.php">http://www.diabetespower.org.uk/index.php</a> </h3>
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Follow the link above to see our route. Join us at the start 14/11/2012 at Portsmouth Diabetes Centre between 8.00am & 8.30am. It would be lovely to meet you.</h3>
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Diabetes Power is a Not for Profit Organisation. The aim of the group is to raise awareness of Type 1 Diabetes and support families and young people living with Type 1 Diabetes. No salaries or expenses are currently paid. </h3>
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We have developed a new product which will be launched on World Diabetes Day! Free Type 1 Awareness Posters and leaflets are available. email:angela@diabetespower.org.uk or contact any other member of the team.</h3>
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<a href="http://www.diabetespower.org.uk/index.php?option=com_content&view=article&id=98&Itemid=94">http://www.diabetespower.org.uk/index.php?option=com_content&view=article&id=98&Itemid=94</a></h3>
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<span style="color: blue;">Together We Can Raise Awareness Of Type 1 Diabetes. Praying For The Cure!!</span></h3>
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<span style="color: blue;">To sponsor us please follow the link:</span></h3>
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<span style="color: blue;"><a href="http://www.justgiving.com/DiabetesPowerCycleRide">http://www.justgiving.com/DiabetesPowerCycleRide</a></span></h3>
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<span style="color: blue;">For anyone who would like to know why I am passionate about raising awareness of Type 1. </span></h3>
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<span style="color: blue;">This is our story: <a href="http://www.youtube.com/watch?v=8NZxUR2dFLQ">http://www.youtube.com/watch?v=8NZxUR2dFLQ</a></span></h3>
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5 children diabetes, coeliacs and mehttp://www.blogger.com/profile/18355214554299409897noreply@blogger.com1tag:blogger.com,1999:blog-8450229305216272723.post-71066476634872403032012-10-19T18:03:00.001+01:002012-10-19T18:03:28.829+01:00Quality In Care Diabetes Award (QIC)<div dir="ltr" style="text-align: left;" trbidi="on">
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<span style="color: blue; font-family: inherit;">I was very proud last year when Diabetes Power won the QIC People's Award.</span></h3>
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<a href="http://www.qualityincare.org/awards/diabetes">http://www.qualityincare.org/awards/diabetes</a></h4>
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<strong>This year I was equally delighted to present the award to this years winner Zoe Scott from Hedgie Prick Diabetes . </strong><br />
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To find out more about the Zoe Scott and her work <a href="http://www.hedgiepricksdiabetes.org.uk/"><span style="background-color: purple; color: blue;">http</span></a><a href="http://www.hedgiepricksdiabetes.org.uk/"><span style="background-color: purple; color: blue;">://www.hedgiepricksdiabetes.org.uk/</span></a></h2>
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<span style="background-color: white;"></span><br />
Life is never that simple. Finding a babysitter to take care of 5 little lovelies is challenging, add Type 1,coeliac and teenage attitude it is virtually impossible. On the last minute we managed to pull it all together. My lovely niece Charlotte came to the rescue supported by my truly amazing friend Marie-Louise, who understands my paranoia 100%. Most of all a huge thank you to Vanessa or "Diabeticness" <a href="http://diabeticness.blogspot.co.uk/">http://diabeticness.blogspot.co.uk/</a> who popped in to make sure Diva Claudia was ok.<br />
Very strange as her timing was "perfect" Claudia was hypo. I felt so much better knowing there was someone who truly understood what Claudia was going through and there to support her until she felt better.<br />
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4 hours later we arrived in Guildford Surrey. The Awards Ceremony was at Sanofi's Head Office.<br />
My dilemma, where do I get changed?? Hotel ? Toilet's? No! I had to get changed in a multi-storey car park! It's a long time since I have had to put tights on in the back of a car. Ahhh those were the care free days BC (before children)<br />
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgTHN5_x1SxHCZ6FNYuaN2REn4AtWvQ4WycsI9R9HIh_p5G2UMwBy_cUywVM7jhWYZOd7qnLm47wLjz2mehM2DS0cN9b3Ipg2ehE_aaqvnFwtsF2-Cc9TunwgSWzsAXKnHWeQ5UJrbMAoo/s1600/3me.jpg" imageanchor="1" style="clear: left; margin-bottom: 1em; margin-left: auto; margin-right: auto;"><img border="0" height="200" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgTHN5_x1SxHCZ6FNYuaN2REn4AtWvQ4WycsI9R9HIh_p5G2UMwBy_cUywVM7jhWYZOd7qnLm47wLjz2mehM2DS0cN9b3Ipg2ehE_aaqvnFwtsF2-Cc9TunwgSWzsAXKnHWeQ5UJrbMAoo/s200/3me.jpg" width="200" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Bright lights not good at my age.</td></tr>
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Hair brushed, lippy applied and the compulsory 5inch heels I was ready to go. I was actually more nervous this year than last. I had to do a video interview first. I got a little tongue tied and being diplomatic isn't my best quality these days.<br />
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It was inspiring to meet the truly inspirational teams who were delivering excellent care and services for people living with Diabetes. This gives me hope for the future, that "best practise" will be shared and taken up by all teams across the UK.<br />
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PMGroup <a href="http://www.pmlive.com/about">http://www.pmlive.com/about</a> asked me to write a blog about why I set up Diabetes Power. They published it in the Event Programme.<br />
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgsm4XupKYLjE6iavEfbna4zyCg2iF-o2v-pNltxTgnE2xqJk2O6fgnEcp7Oty9xWaN3AY7KYt_YnnEhAGUr_6kPgWGelhYyW_IBWbbKp4HMZ5Ms19qgrtntF1jcc1Hy-AMEtNgX91eOy8/s1600/2.JPG" imageanchor="1" style="clear: left; margin-bottom: 1em; margin-left: auto; margin-right: auto;"><img border="0" height="200" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgsm4XupKYLjE6iavEfbna4zyCg2iF-o2v-pNltxTgnE2xqJk2O6fgnEcp7Oty9xWaN3AY7KYt_YnnEhAGUr_6kPgWGelhYyW_IBWbbKp4HMZ5Ms19qgrtntF1jcc1Hy-AMEtNgX91eOy8/s200/2.JPG" width="150" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Why I set up DP.</td></tr>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhYq5jLvOOWeNw03bz4JUn7JqHKBLsiyTjrdhDooQ0MnEi51qQXQeUmom4Vr0vxfW_1OeAaPnWLGtxtqxxpaKJd5EX2M5u-LAX0NBqUEYo44Dsz0rOXtlwR4KZ-tyRsAci6ZbG5XK1quA4/s1600/1.JPG" imageanchor="1" style="clear: left; margin-bottom: 1em; margin-left: auto; margin-right: auto;"><img border="0" height="200" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhYq5jLvOOWeNw03bz4JUn7JqHKBLsiyTjrdhDooQ0MnEi51qQXQeUmom4Vr0vxfW_1OeAaPnWLGtxtqxxpaKJd5EX2M5u-LAX0NBqUEYo44Dsz0rOXtlwR4KZ-tyRsAci6ZbG5XK1quA4/s200/1.JPG" width="150" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Very Proud<br />
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<span style="color: blue; font-size: small;">I sometimes feel that there is little or no recogition for all the work that we do to raise awareness of Type 1 Diabetes, all the money we raise for the Charities, yet we are the very people living the life. I think it is time for change.</span><br />
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5 children diabetes, coeliacs and mehttp://www.blogger.com/profile/18355214554299409897noreply@blogger.com1tag:blogger.com,1999:blog-8450229305216272723.post-45371078789393180142012-10-10T11:53:00.001+01:002012-10-10T15:49:29.735+01:00Gluten Free Pizza! Thank You Pizza Hut<div dir="ltr" style="text-align: left;" trbidi="on">
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiu-3qKdfwUZLE6TzozEsE6ugUhF5WD1IsoB6b9A75KHL0cl_CJsYgcteUsbFirimdIvZ4sCE1mnwS0xP0G93mn5npScV39P_xxAvOcO83lfGFKIrzEM1cgR_sQD-sAtYW6NjJMfMsM24I/s1600/pizza+1.jpg" imageanchor="1" style="clear: left; margin-bottom: 1em; margin-left: auto; margin-right: auto;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiu-3qKdfwUZLE6TzozEsE6ugUhF5WD1IsoB6b9A75KHL0cl_CJsYgcteUsbFirimdIvZ4sCE1mnwS0xP0G93mn5npScV39P_xxAvOcO83lfGFKIrzEM1cgR_sQD-sAtYW6NjJMfMsM24I/s320/pizza+1.jpg" width="240" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><strong>I cant believe what I am seeing Gluten Free Pizza In Pizza Hut</strong></td></tr>
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I am often easily excited these days!! But I have to say that Monday October 8th 2012 was a day that all the Allison family were very very in fact ridiculously excited. Why you may ask? <br />
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<strong>Pizza Hut officially launched their gluten free pizza. Yes we were excited about pizza.!!!</strong><br />
Living with Coeliac Disease can be very restricting especially when you want to eat out. 4 years ago Claudia was diagnosed with Coeliac Disease shortly after developing Type 1 Diabetes. Isabella was then diagnosed with Coeliac Disease.<br />
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For anybody who isn't aware Coeliac Disease is not an allergy, it's an autoimmune disease. Basically if Claudia and Bella eat food with gluten in it , their "gut" will be destroyed. This can lead to a whole host of unpleasant conditions in the future. <a href="http://www.coeliac.org.uk/">www.coeliac.org.uk</a> for full details. If Claudia eats gluten it now makes her violently sick, which is not pleasant especially when you add Type 1 Diabetes into the mix.<br />
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A huge thankyou to the staff at Pizza Hut at the Capitol Way Centre Walton-le-Dale Preston. The service was truly 1st class.<br />
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4 years on we are able to eat in Pizza Hut!! I think the pictures say it all. </h3>
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<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi_6i_F1QwOM_zdM-oJodt5zO14PFFJYP0LN796ehpIbG-EPChD5rpDcclH6vDq0cPI_kMDj3aU_KAuU5jUjN3bMKIb0Vae27MVtepSyJjhud85lQrHswMJC5i4EKi2whHIp69PKu8ILuI/s1600/pizza+2.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="200" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi_6i_F1QwOM_zdM-oJodt5zO14PFFJYP0LN796ehpIbG-EPChD5rpDcclH6vDq0cPI_kMDj3aU_KAuU5jUjN3bMKIb0Vae27MVtepSyJjhud85lQrHswMJC5i4EKi2whHIp69PKu8ILuI/s200/pizza+2.jpg" width="150" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">That tastes sooooo good!</td></tr>
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<table cellpadding="0" cellspacing="0" class="tr-caption-container" style="float: left;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiLbOWNyMUDit-PInx9lhpfqsOVNmZcPt2dEmVe5BGrwaiZrMcUQavCOg_hvBHLVdlogMkn9XtLjhYeiljJAlpoDEmfTbL2sE0Mg2scspdWY1PNFbT0dxnVrUcZRp6bOFS5zlOiv1Xn6Ts/s1600/pizza+3.jpg" imageanchor="1" style="clear: left; margin-bottom: 1em; margin-left: auto; margin-right: auto;"><img border="0" height="200" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiLbOWNyMUDit-PInx9lhpfqsOVNmZcPt2dEmVe5BGrwaiZrMcUQavCOg_hvBHLVdlogMkn9XtLjhYeiljJAlpoDEmfTbL2sE0Mg2scspdWY1PNFbT0dxnVrUcZRp6bOFS5zlOiv1Xn6Ts/s200/pizza+3.jpg" width="150" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">It's true gluten free </td></tr>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEha_aAvrDYp49cHVDZEVktvWsAiFnxRIWZELWcFO2aTjh5HAfD7wZGOg4OVJBdZop8m8wRPjk6dp2I5H-werW-IgioKjMG-Rgzrd-qiYVmc6fPtKRo3vhhyphenhyphendyWP2ILJOGyy2-1FnA50ke8/s1600/pizza6.JPG" imageanchor="1" style="clear: left; margin-bottom: 1em; margin-left: auto; margin-right: auto;"><img border="0" height="200" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEha_aAvrDYp49cHVDZEVktvWsAiFnxRIWZELWcFO2aTjh5HAfD7wZGOg4OVJBdZop8m8wRPjk6dp2I5H-werW-IgioKjMG-Rgzrd-qiYVmc6fPtKRo3vhhyphenhyphendyWP2ILJOGyy2-1FnA50ke8/s200/pizza6.JPG" width="150" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Such class!!</td></tr>
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<table cellpadding="0" cellspacing="0" class="tr-caption-container" style="float: right; margin-left: 1em; text-align: right;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg1zARH7kk31HLtIFC0c4x3ePUh4KJZU15Tn_xWPQwJIob7Tv_GmMRTjYD_BytXfilO4Md_s-OlMwuYXw_FAgKvnL11knVC9GGoshfzbys0LJ3Ygk09ok6iS4wT7HhmfcADWu5pQeCdIfs/s1600/pizza5.JPG" imageanchor="1" style="clear: right; margin-bottom: 1em; margin-left: auto; margin-right: auto;"><img border="0" height="200" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg1zARH7kk31HLtIFC0c4x3ePUh4KJZU15Tn_xWPQwJIob7Tv_GmMRTjYD_BytXfilO4Md_s-OlMwuYXw_FAgKvnL11knVC9GGoshfzbys0LJ3Ygk09ok6iS4wT7HhmfcADWu5pQeCdIfs/s200/pizza5.JPG" width="150" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">I have never eaten in Pizza Hut before</td></tr>
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<table cellpadding="0" cellspacing="0" class="tr-caption-container" style="float: left;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjJZ5E-L1bRIioxwJ2xyLgaCk02IFJeCfzPNqSTEHcdwjXoQ3NQ7bIlEsvO52pIwttwEa1sf8tuiqlskEYMDfPEOO6aCg_puYeIReE-uyT9gxOQEuzkMGPh7apNvpF_5VnxpKa5pCL17xo/s1600/pizza4.JPG" imageanchor="1" style="clear: left; margin-bottom: 1em; margin-left: auto; margin-right: auto;"><img border="0" height="200" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjJZ5E-L1bRIioxwJ2xyLgaCk02IFJeCfzPNqSTEHcdwjXoQ3NQ7bIlEsvO52pIwttwEa1sf8tuiqlskEYMDfPEOO6aCg_puYeIReE-uyT9gxOQEuzkMGPh7apNvpF_5VnxpKa5pCL17xo/s200/pizza4.JPG" width="150" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">This is fab !!!<br />
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A huge thank you to Pizza Hut for making my little lovelies very smiley.</h3>
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<a href="http://www.pizzahut.co.uk/">http://www.pizzahut.co.uk/</a> for your nearest restaurant.</h2>
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5 children diabetes, coeliacs and mehttp://www.blogger.com/profile/18355214554299409897noreply@blogger.com1tag:blogger.com,1999:blog-8450229305216272723.post-46054593990334619732012-09-29T19:49:00.002+01:002012-09-29T19:49:58.606+01:00We need a Type 1 "Real Life Doll"<div dir="ltr" style="text-align: left;" trbidi="on">
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj_q8MjvvPceuY4k08CIZHZrGDuz-dl0gnO6YdlDw9pvzCVw0TlYDdL3mkCJ8bbbMHPbSyn3FMlQ29OM86sbHOG2HK51aMP4N3-cEHywRstHJ1KPdt52wyfPAgaiDz6BnTQP-WwmjZdmi8/s1600/Tabitha-SL_021.jpg" imageanchor="1" style="clear: left; margin-bottom: 1em; margin-left: auto; margin-right: auto;"><img border="0" height="200" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj_q8MjvvPceuY4k08CIZHZrGDuz-dl0gnO6YdlDw9pvzCVw0TlYDdL3mkCJ8bbbMHPbSyn3FMlQ29OM86sbHOG2HK51aMP4N3-cEHywRstHJ1KPdt52wyfPAgaiDz6BnTQP-WwmjZdmi8/s200/Tabitha-SL_021.jpg" width="150" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Type 1 Doll. Spend 24 hours with me!!</td></tr>
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How many times have you woken in the morning and wondered what happened ? Looking at the bedside cabinet brings it all back. Ah yes! the blood glucose strips just left where they dropped, the cannula's empty wrapping, glucose tablets, snacks, needles from injections. Ahh and the extra person in your bed.No the gremlins hadn't invaded the house last night. The monster of Type 1 Diabetes had.<br />
The alarm clock still ringing, no matter what, we have to carry on as usual.<br />
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After watching Emmerdale over the last few weeks. Yes, I am addicted to the soaps. In fact living in my house is a soap opera in itself. 5 children, 1 husband , 1 house rabbit and me with OCD diabetes.<br />
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I had to laugh when they bought the "real life baby doll". Then I thought wouldn't it be brilliant if someone designed a "real life Type 1 doll". That when it screamed, cried, got giggly, aggressive, shirty and all the other delightful side effects of hyper/hypo episodes. The person had to check the blood glucose levels and treat accordingly. Weigh food, count carbs, adjusting for sports, swimming, playing, illness, in fact the list is endless.<br />
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This would hopefully help people understand how challenging Type 1 can be.<br />
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<strong>So when people say</strong>: <br />
you look tired<br />
why is your child playing up<br />
should you really give your child sweets/sugary drinks<br />
she looks healthy enough<br />
children are resilient<br />
I can't watch, how can you do that..<br />
so many more stunningly stupid statements.....<br />
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I could just hand them the Type 1 doll and see how long they last. I am sure that at the end of 24 hours they would have had enough.<br />
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It should be compulsory for any medical professional providing Diabetes Care, to live with a Type 1 doll for 3 months or I would be more than happy for them to live with us. <br />
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Sadly for most of us we have "real life Type 1" every day. <br />
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September has been very challenging. Claudia starting High School has taken it's toll on her levels. It is only at the end of week 4 that we finally managed to eliminate the majority of hypo's. <br />
Phew! bet any money that the next 2 weeks will be spent cranking the insulin back up.<br />
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It has left me feeling exhausted and lacking any sense of humour. Claudia's behaviour has been interesting. Yes, tears, anger, exhaustion all on top of starting a new school and living with Type 1 and Coeliac Disease.<br />
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Even though Claudia has been diagnosed over 4 years, part of me is still angry that it happened to one of my little lovelies. I honestly think that feeling will always stay with me. <br />
In a strange way it gives me the strength to carry on the battle each and every day to keep Claudia as healthy as possible.<br />
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Somebody said to me recently, "you must be used to it by now". Sometimes I do admire my ability to remain civilised and smile sweetly. I recommend buying a dart board. It can be very therapeutic throwing arrows at a board.<br />
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEheXmGKgzI_wgGN3IwDZBx8NZmzsW97BkSBnR096C0i7FCt8w0G87fXB1d6cNlZYmnsxHIEMiwk9ghW5cd_fwlbd6NTzYzouD8r4Y6ET81SCRgnR7FXy5qsccMrXWcitHnyT6F_G3CHkrQ/s1600/13475403-illustration-of-dart-board-on-motivational-aim-background.jpg" imageanchor="1" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEheXmGKgzI_wgGN3IwDZBx8NZmzsW97BkSBnR096C0i7FCt8w0G87fXB1d6cNlZYmnsxHIEMiwk9ghW5cd_fwlbd6NTzYzouD8r4Y6ET81SCRgnR7FXy5qsccMrXWcitHnyT6F_G3CHkrQ/s1600/13475403-illustration-of-dart-board-on-motivational-aim-background.jpg" /></a><br />
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I suppose deep down I just want people to understand how hard life can be for our children. That's what has made me passionate about raising awareness of Type 1 Diabetes, not forgetting the delightful Doctor who said Claudia had a sore throat, when in fact she was in DKA. (diabetic ketoacidosis)<br />
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<span style="color: blue;"><strong>With World Diabetes day rapidly approaching I am on a mission to raise awareness. Just not sure how. I am cycling from Portsmouth to Birmingham again!!! 155 miles ouch. </strong></span><br />
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5 children diabetes, coeliacs and mehttp://www.blogger.com/profile/18355214554299409897noreply@blogger.com1tag:blogger.com,1999:blog-8450229305216272723.post-8562657329770528782012-09-07T14:56:00.001+01:002012-09-07T14:56:40.973+01:00Children's Landmark Days & Type 1 Diabetes<div dir="ltr" style="text-align: left;" trbidi="on">
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjdnkjz8x16aMz8JLa_-8xTRoLoZUmu8D2gePmWV-uL39sFtdxW_4qcvauDWXYFxlsch-Wi39w3vaGVbl0NRhPy-RuT_KbDE3jMuxrOcTa2lEsPf941nHyJDjfjuQ84F_ibtdr5F4G-KWo/s1600/Claudiaaa.JPG" imageanchor="1" style="clear: left; margin-bottom: 1em; margin-left: auto; margin-right: auto;"><img border="0" height="200" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjdnkjz8x16aMz8JLa_-8xTRoLoZUmu8D2gePmWV-uL39sFtdxW_4qcvauDWXYFxlsch-Wi39w3vaGVbl0NRhPy-RuT_KbDE3jMuxrOcTa2lEsPf941nHyJDjfjuQ84F_ibtdr5F4G-KWo/s200/Claudiaaa.JPG" width="150" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Claudia's 1st day at High School.</td></tr>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEggdGCBIxUgdsYgQ8pE1T2lBBeDrgTZIr4G6UiVLwCY1td2Uz-T9u_nF_M5wZEisVaVto-drgHykzTcQclBJ8cf9X3CKzyXhJmyafsraidCZ7lIwMaDNj1uLvvMMmtYzJZfVQcaBpNvhjs/s1600/nervous.jpg" imageanchor="1" style="clear: right; margin-bottom: 1em; margin-left: auto; margin-right: auto;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEggdGCBIxUgdsYgQ8pE1T2lBBeDrgTZIr4G6UiVLwCY1td2Uz-T9u_nF_M5wZEisVaVto-drgHykzTcQclBJ8cf9X3CKzyXhJmyafsraidCZ7lIwMaDNj1uLvvMMmtYzJZfVQcaBpNvhjs/s1600/nervous.jpg" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">This was me !!!!!</td></tr>
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Well what a week! 4 back a school, 1 at nursery and I am at work.<br />
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There are many occasions in our children's lives that are a sign they are growing up all too quickly.<br />
As a parent I knew that I would experience a whole host of emotions, what I had never factored into the equation were all the added emotions that Type 1 Diabetes and Coeliac would bring with it:<br />
<br />
Tears of joy and sadness<br />
Frustration<br />
Anger<br />
Bewilderment<br />
You have got to be joking, where did that hypo or hyper come from???<br />
Emergency kit in school<br />
Emergency kit in car<br />
School bag weighing 10 kilo's (from BG meter's ........ gluten free food)<br />
<br />
<br />
We survived the primary school experience. For Claudia it was very positive and to be honest her teachers and teaching assistants were truly inspirational. In my opinion indulged Claudia far too often. I am glad they did.<br />
<br />
So huge deep breath from me and a very excited Claudia this week. On Wednesday she started High School. Where have the years gone? Claudia was just 7 when she was diagnosed, now she is 11 and at High School.<br />
<br />
Hand on heart I have been teary a lot of the holidays, worrying if High School would take good care of Claudia. I have had to hide those fears from Claudia. I wanted her to feel confident and excited.<br />
<br />
I feel one of the biggest battles: Our children look "normal" from the outside. Sadly that can be the very reason people do not realise that Type 1 Diabetes is a life long condition with no known cure only Insulin as their 24/7 life support.So often they are not supported as they should be within education and indeed the community.<br />
<br />
High School had agreed to allow us to deliver a presentation about Type 1 Diabetes and how to support Claudia in her self care. We were given 20 minutes !! mmmmm <br />
<br />
Having OCD, I was ready with my Power Point, armed with a pump and teddy for demonstration. The evil minx in me did think about asking a teacher to volunteer.<br />
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Then everything changed, I was offered a job, which I accepted. Only down side I had to start...... you guessed it this week. So I had to entrust the presentation to my beloved husband Donald!! That was so very very very hard for me being such a control freak !! <br />
Donald said the presentation went well and all the teachers were present. He had over 40 minutes due to the questions the teachers asked. Poor Donald was interrogated for over an hour when I returned home from work.<br />
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Only time will tell if they have truly taken on board what a truly complex condition Type 1 is. No matter how amazing our children are at self care. They are still children. Sometimes that's what hurts me the most. I just want Claudia to be carefree like I was as a child, but sadly she can't.<br />
<br />
Bless her cotton socks, she has text me every day with her levels etc. Yes school agreed to her having a mobile phone at all times and she can contact me at any point in time if she is concerned or needs advice. That really has helped my OCD and give me peace of mind.<br />
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What I do find draining is that all the Landmark days are such a battle.<br />
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I have known for a while now, Claudia's thyroid is "showing anti-bodies" In May 2011 she screened clear. In May 2012 her antibody levels were that high they went past the lab's register scale.<br />
We have been advised that in the near future it is very likely,Claudia's thyroid will stop functioning and she will require medication. I am just coming to terms with the news. I have explained it all to Claudia, she has taken it in her stride. (in many respects that makes it more heartbreaking) I did struggle when she asked why me ? I simply just had no answer, other than to say we were unique and had quirky genes!<br />
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgdT9DMizLG8B7H997VcoQfRsDItplSFywqI8Ve0fW28Xlx99kS0RdrimGhUlAezYzTwQHnlVVBSgTaEploQMhY5W7Kq4pfr7UJ3Ytm3m1ZrOi4KCMDLhB5mknPC5_hbI9s8sWKF4kWp1Q/s1600/school1.JPG" imageanchor="1" style="clear: left; margin-bottom: 1em; margin-left: auto; margin-right: auto;"><img border="0" height="200" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgdT9DMizLG8B7H997VcoQfRsDItplSFywqI8Ve0fW28Xlx99kS0RdrimGhUlAezYzTwQHnlVVBSgTaEploQMhY5W7Kq4pfr7UJ3Ytm3m1ZrOi4KCMDLhB5mknPC5_hbI9s8sWKF4kWp1Q/s200/school1.JPG" width="150" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Claudia and Isabella. Note the difference in length of the school skirts. I am always shouting pull your skirt down!!! </td></tr>
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5 children diabetes, coeliacs and mehttp://www.blogger.com/profile/18355214554299409897noreply@blogger.com1tag:blogger.com,1999:blog-8450229305216272723.post-21062379803057945972012-08-31T07:54:00.000+01:002012-08-31T07:54:00.414+01:00Guest Blog By Heather<div dir="ltr" style="text-align: left;" trbidi="on">
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<span lang="EN-US" style="color: black; font-family: "Arial","sans-serif"; font-size: 11.5pt; mso-bidi-font-family: "Times New Roman"; mso-fareast-font-family: "Times New Roman";">I have recently been contacted by Heather a truly inspiring woman. Like me she wants to share how life has changed. She hasn't got Type 1 Diabetes but she has "survived cancer". Reading her blog I read a statement that really hit home. Someone asked Heather:</span></div>
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<span lang="EN-US" style="color: black; font-family: "Arial","sans-serif"; font-size: 11.5pt; mso-bidi-font-family: "Times New Roman"; mso-fareast-font-family: "Times New Roman";"><span style="color: black; font-family: "Calibri","sans-serif"; font-size: 11pt; mso-ansi-language: EN-GB; mso-bidi-language: AR-SA; mso-fareast-font-family: Calibri; mso-fareast-language: EN-US; mso-fareast-theme-font: minor-latin;"> </span><span style="color: #1f497d; font-family: "Calibri","sans-serif"; font-size: 11pt; mso-ansi-language: EN-GB; mso-bidi-language: AR-SA; mso-fareast-font-family: Calibri; mso-fareast-language: EN-US; mso-fareast-theme-font: minor-latin;">“How long until
things get back to normal?” My answer is never! It is the NEW normal.
Everything you knew, every breath, every heartbeat, every day you wake up—it’s
the new, different normal. It’s a world coloured by a cancer diagnosis”. </span></span></div>
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<span lang="EN-US" style="color: black; font-family: "Arial","sans-serif"; font-size: 11.5pt; mso-bidi-font-family: "Times New Roman"; mso-fareast-font-family: "Times New Roman";"><span style="color: #1f497d; font-family: "Calibri","sans-serif"; font-size: 11pt; mso-ansi-language: EN-GB; mso-bidi-language: AR-SA; mso-fareast-font-family: Calibri; mso-fareast-language: EN-US; mso-fareast-theme-font: minor-latin;"><strong>The above statement describes how life is living with Type 1 Diabetes!</strong></span></span><span lang="EN-US" style="color: black; font-family: "Arial","sans-serif"; font-size: 11.5pt; mso-bidi-font-family: "Times New Roman"; mso-fareast-font-family: "Times New Roman";"></span></div>
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<span lang="EN-US" style="color: black; font-family: "Arial","sans-serif"; font-size: 11.5pt; mso-bidi-font-family: "Times New Roman"; mso-fareast-font-family: "Times New Roman";"></span><br />
<span lang="EN-US" style="color: black; font-family: "Arial","sans-serif"; font-size: 11.5pt; mso-bidi-font-family: "Times New Roman"; mso-fareast-font-family: "Times New Roman";"></span><br />
<span lang="EN-US" style="color: black; font-family: "Arial","sans-serif"; font-size: 11.5pt; mso-bidi-font-family: "Times New Roman"; mso-fareast-font-family: "Times New Roman";"></span><br />
<span lang="EN-US" style="color: black; font-family: "Arial","sans-serif"; font-size: 11.5pt; mso-bidi-font-family: "Times New Roman"; mso-fareast-font-family: "Times New Roman";">It Can't Be Cancer</span><span lang="EN-US" style="color: black; font-family: "Times","serif"; font-size: 13.5pt; mso-bidi-font-family: "Times New Roman"; mso-fareast-font-family: "Times New Roman";"><br />
<br />
</span><span lang="EN-US" style="color: black; font-family: "Arial","sans-serif"; font-size: 11.5pt; mso-bidi-font-family: "Times New Roman"; mso-fareast-font-family: "Times New Roman";">"It can't be cancer." That was one of the first
things that entered my mind when my doctor told me my diagnosis. I
stared at him with a mixture of terror and disbelief. After all, I was a
young woman and a new mother with a 3 ½ month old baby. Cancer was not
something that was supposed to happen to me. Unfortunately, I did have
cancer, and I did not just have any cancer. I was suffering from
malignant pleural mesothelioma, a disease caused almost exclusively by exposure
to asbestos. </span><span lang="EN-US" style="color: black; font-family: "Times","serif"; font-size: 13.5pt; mso-bidi-font-family: "Times New Roman"; mso-fareast-font-family: "Times New Roman";"><br />
<br />
</span><span lang="EN-US" style="color: black; font-family: "Arial","sans-serif"; font-size: 11.5pt; mso-bidi-font-family: "Times New Roman"; mso-fareast-font-family: "Times New Roman";">When I tell people about my cancer, their first response is
confusion because most people believe that asbestos is banned. It is not.
They also want to know how on earth I was ever exposed to asbestos in the
first place. The answer is that I was exposed when I was a child through
contact with my father's work clothes. He worked with drywall on
construction sites, and the white dust that always coated his clothes and the
upholstery in his car held a dangerous secret. It was full of microscopic
fibers of asbestos. So while I never came into contact with the source of
the asbestos, I was still exposed to the material. This is what doctors
call secondary exposure.</span><span lang="EN-US" style="color: black; font-family: "Times","serif"; font-size: 13.5pt; mso-bidi-font-family: "Times New Roman"; mso-fareast-font-family: "Times New Roman";"><br />
<br />
</span><span lang="EN-US" style="color: black; font-family: "Arial","sans-serif"; font-size: 11.5pt; mso-bidi-font-family: "Times New Roman"; mso-fareast-font-family: "Times New Roman";">I was </span><span lang="EN-US"><a href="http://www.mesothelioma.com/mesothelioma/diagnosis/"><span style="font-family: "Arial","sans-serif"; font-size: 11.5pt; mso-bidi-font-family: "Times New Roman"; mso-fareast-font-family: "Times New Roman";"><span style="color: blue;">diagnosed with
mesothelioma</span></span></a></span><span lang="EN-US" style="color: black; font-family: "Arial","sans-serif"; font-size: 11.5pt; mso-bidi-font-family: "Times New Roman"; mso-fareast-font-family: "Times New Roman";"> when I was only 36 years
old. At the time, my doctors at the Mayo Clinic were only familiar with
one other case of this type of cancer in such a young person.
Mesothelioma is much more likely to occur in older people, especially
older men. When mesothelioma first became common, the patients were
almost always middle-aged or older men with a history of working either in
construction or aboard ships. Soon after these first cases
appeared, doctors also started seeing this cancer among women. These
women were usually secretaries who worked in schools with asbestos tiles or the
wives of construction workers. These wives were exposed when they handled
and laundered their husbands' asbestos covered clothing. </span><span lang="EN-US" style="color: black; font-family: "Times","serif"; font-size: 13.5pt; mso-bidi-font-family: "Times New Roman"; mso-fareast-font-family: "Times New Roman";"><br />
<br />
</span><span lang="EN-US" style="color: black; font-family: "Arial","sans-serif"; font-size: 11.5pt; mso-bidi-font-family: "Times New Roman"; mso-fareast-font-family: "Times New Roman";">My diagnosis was one of those that marked the advent of a new
generation of mesothelioma sufferers, the children. We are members of the
generation who sat in classrooms under crumbling asbestos tiles or played in
attics with exposed vermiculate insulation that contained asbestos fibers.
We are the children who ran to greet our fathers when they were covered
with dust from work and who borrowed their dust covered jackets to stay warm
when we did our chores. </span><span lang="EN-US" style="color: black; font-family: "Times","serif"; font-size: 13.5pt; mso-bidi-font-family: "Times New Roman"; mso-fareast-font-family: "Times New Roman";"><br />
<br />
</span><span lang="EN-US" style="color: black; font-family: "Arial","sans-serif"; font-size: 11.5pt; mso-bidi-font-family: "Times New Roman"; mso-fareast-font-family: "Times New Roman";">The more involved I become with other mesothelioma patients, the
more young people I meet. Like me, they are just beginning their careers.
Many have new marriages and new babies. They are young men and
women in their 20's and 30's, and they have had to put aside their other
aspirations in order to concentrate on battling mesothelioma. Fortunately
for all of us, there is hope. There have been great advances in the </span><span lang="EN-US"><a href="http://www.mesothelioma.com/treatment/"><span style="font-family: "Arial","sans-serif"; font-size: 11.5pt; mso-bidi-font-family: "Times New Roman"; mso-fareast-font-family: "Times New Roman";"><span style="color: blue;">treatment of
mesothelioma</span></span></a></span><span lang="EN-US" style="color: black; font-family: "Arial","sans-serif"; font-size: 11.5pt; mso-bidi-font-family: "Times New Roman"; mso-fareast-font-family: "Times New Roman";">, and scientists are making
new discoveries every day. Greater numbers of mesothelioma patients of
all ages are surviving than ever before.</span><span lang="EN-US" style="color: black; font-family: "Times","serif"; font-size: 13.5pt; mso-bidi-font-family: "Times New Roman"; mso-fareast-font-family: "Times New Roman";"><br />
<a href="http://www.blogger.com/null" name="_GoBack"></a><br />
<br />
</span><span lang="EN-US" style="color: black; font-family: "Arial","sans-serif"; font-size: 11.5pt; mso-bidi-font-family: "Times New Roman"; mso-fareast-font-family: "Times New Roman";">Why do I share this painful story? I do so because I want
people to understand the many faces of mesothelioma. I want to spread
awareness of this disease, because I want to effect change. Until people
understand mesothelioma and those of us who suffer from it, we cannot make
progress toward better treatments. I also want to spread the hope that I
have found in the mesothelioma community to those who are struggling with a new
and devastating diagnosis. If my words help someone to break out of the
cycle of hopelessness and fear that so often afflicts those newly diagnosed
with this disease, my time has been well spent.</span><span lang="EN-US" style="color: black; font-family: "Times","serif"; font-size: 13.5pt; mso-bidi-font-family: "Times New Roman"; mso-fareast-font-family: "Times New Roman";"><br style="mso-special-character: line-break;" />
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5 children diabetes, coeliacs and mehttp://www.blogger.com/profile/18355214554299409897noreply@blogger.com0tag:blogger.com,1999:blog-8450229305216272723.post-5417725653763522742012-08-02T14:04:00.000+01:002012-08-02T15:14:04.846+01:00Holiday Season<div dir="ltr" style="text-align: left;" trbidi="on">
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<tr><td class="tr-caption" style="text-align: center;">Scooter Power</td></tr>
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What can I say my 5 little lovelies are all at home with me for the summer holidays!! Whilst life is even more demanding. In many ways life becomes a little easier. I can have Type 1 and Coeliac OCD and control to my hearts content !! Oh yes.........<br />
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No phone calls from schools, no packed lunches, no wondering what BG levels are, if BG tests have been done, if the right insulin carb/ratio have been given, hypo's/hyper's treated etc. <br />
All the above has been traded for their favourite phrase "mummy can I have" ............. is now 24/7. Followed by please, please oh please mummy. Sound familiar?????<br />
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How to you keep 5 children in order and stay sane? My most effective one due to the rubbish weather in the UK is:<br />
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<strong>Weather report, they stand outside for 5 minutes to cool off. </strong><br />
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As I am sat typing this, Darcy is on her balancing board, which helps her hyper-mobility, swaying in my direction.The baby is running wild outside with our giant house rabbit and ducklings. My teenager is sat watching TV,troughing pizza. Very predictable, although in her defence she is dressed. Felicity is playing trains and Diva Claudia is trying to see what I am writing about!!<br />
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We spent the first week of the summer in Felixstowe in a caravan by the beach. The weather was fantastic. Although Claudia has been diagnosed for over 4 years, it always amazes me how different each summer can be. Why I took spare insulin I don't know as she required so little during that week. <br />
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This is were her CGM was truly amazing. Her pump was on 0 and she was having free carbs. As soon as we could see her BG rising we put her back on small amounts of basal. <br />
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Teary moment walking down the beach with Claudia. Claudia turned to me and said "wouldn't it be lovely if I could have a weeks holiday from diabetes". Thank goodness I was wearing my sunglasses.<br />
4 of my children were running round wild, Claudia joined them but its not the same when your mum is shouting whats your BG, test, have some carbs. I can see the look on her face sometimes, "mum just leave me alone". Yet, if she goes hypo she feels rotten. As a mother I don't want her to feel unwell. I really don't want the verbal whip lashing she can hand out when her levels are low or high.<br />
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<strong>Its such a fine, virtually impossible line we have to walk. Safety, healthy versus childhood freedom and independence.</strong><br />
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Most people don't understand there is no break & no rest from Type 1 Diabetes even when on holiday. For me that is one of the most draining parts of the condition.There is no respite. I have to <br />
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<strong>constantly match:</strong><br />
<strong>food</strong><br />
<strong>insulin </strong><br />
<strong>exercise </strong><br />
<strong>excitement</strong><br />
<strong>stress </strong><br />
<strong>heat</strong><br />
<strong>illness</strong><br />
<strong>the unknown ( ahhhh so frustrating)</strong><br />
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with insulin in order to keep Claudia to happy and healthy. Now if there was an exact formula/calculation life would be so much more simplistic! Instead its a case of following the school of thought and sticking your finger in the wind on many occasions. Oh and just as you think yes its working. It all changes ! and you hit the floor and have to start all over again.<br />
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I am now in the mad mother mode of buying school uniform with 5 children as my advisers on what they will or will not wear. I have the "you are having those"smile down to a fine art! <br />
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Claudia starts High School in September. Not sure how I feel at the moment. So many emotions going on inside me. Proud that she is growing up into a beautiful young lady. Claudia is ready for High School. However I don't think I am. I am scared and also in the back of my mind is a huge flashing warning light saying: TEENAGER on its way, run for cover.<br />
<strong>I do know one thing High School are probably not ready for me and my OCD diabetes care.</strong><br />
I am currently putting my power point together for the training day at High School. A friend of mine refers to us mums as pit bulls, rightly so as God help anyone who doesn't take good care of our children.<br />
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What I wouldn't give for 1 day in our lives before Type 1 Diabetes and Coeliac entered. Praying for that cure. until then its chin up and onwards and upwards. Life is still lots of fun, just more challenging.<br />
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<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg_pgeeYY78LTxOhtN8PLKLSCnP9MBhtMYQ9eCckxBA-LBWHRSfPSO-mLuTfCqn2Ehv0m5unA5160kwFFjqN6BSeGih3HLbYszWXm942RCUB3eByv9H1UMfXCc_Ff3600MxF3gsWFIb-iY/s1600/rebel.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="200" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg_pgeeYY78LTxOhtN8PLKLSCnP9MBhtMYQ9eCckxBA-LBWHRSfPSO-mLuTfCqn2Ehv0m5unA5160kwFFjqN6BSeGih3HLbYszWXm942RCUB3eByv9H1UMfXCc_Ff3600MxF3gsWFIb-iY/s200/rebel.jpg" width="150" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Oh yes, I can have ice-cream.</td></tr>
</tbody></table>
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<br /></div>5 children diabetes, coeliacs and mehttp://www.blogger.com/profile/18355214554299409897noreply@blogger.com2tag:blogger.com,1999:blog-8450229305216272723.post-80404537107379419972012-07-20T14:05:00.002+01:002012-07-20T14:05:32.384+01:00Your Thoughts/Comments and Support are Vital !<div dir="ltr" style="text-align: left;" trbidi="on">
I have been asked to but this Discussion Paper on my Web Site and Blog. Your comments and thought are vital and would be welcomed by the Consultants who are putting this paper together<br />
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<b style="mso-bidi-font-weight: normal;"><span style="font-family: "Calibri","sans-serif"; font-size: 14pt; mso-bidi-font-family: Arial; mso-bidi-font-size: 12.0pt;"><u>Discussion Paper on the recommendation of TA151 that children using an
Insulin Infusion Pump undergo a trial of MDI between the ages of 12 and 18
years.<o:p></o:p></u></span></b></div>
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<a href="" name="_GoBack"></a><span style="font-family: "Calibri","sans-serif"; font-size: 14pt; mso-bidi-font-family: Arial; mso-bidi-font-size: 12.0pt;"><strong>The recommendation only appears for those children who start insulin
pumps BEFORE the age of 12 years ie –</strong> <o:p></o:p></span></div>
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<i style="mso-bidi-font-style: normal;"><span style="font-family: "Calibri","sans-serif"; mso-bidi-font-family: Arial; mso-bidi-font-size: 11.5pt;">CSII therapy(insulin pump) is recommended as a treatment option
for children younger than 12 years with type 1 diabetes mellitus provided that:
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<span style="font-family: "Calibri","sans-serif";"><span style="mso-list: Ignore;">•<span style="font-size-adjust: none; font-stretch: normal; font: 7pt/normal "Times New Roman";">
</span></span></span><i style="mso-bidi-font-style: normal;"><span style="font-family: "Calibri","sans-serif"; mso-bidi-font-family: Arial; mso-bidi-font-size: 11.5pt;">MDI therapy is considered to be impractical or inappropriate, and</span></i></div>
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<span style="font-family: "Calibri","sans-serif"; mso-bidi-font-size: 11.5pt;"><span style="mso-list: Ignore;">•<span style="font-size-adjust: none; font-stretch: normal; font: 7pt/normal "Times New Roman";">
</span></span></span><i style="mso-bidi-font-style: normal;"><span style="color: windowtext; font-family: "Calibri","sans-serif"; mso-bidi-font-family: Arial; mso-bidi-font-size: 11.5pt;">children on insulin pumps would be expected to undergo
a trial of MDI therapy between the ages of 12 and 18 years. <o:p></o:p></span></i></div>
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<span style="font-family: "Calibri","sans-serif"; font-size: 14pt; mso-bidi-font-family: Arial; mso-bidi-font-size: 12.0pt;">Furthermore, if
the document is read further, the committee obviously discussed this and agreed
that this would ONLY be necessary in those children who had NEVER had a trial
of MDI (see 4.3.8 and 4.3.9).<span style="mso-spacerun: yes;"> </span>In
addition, there are concerns about stopping a pump and reverting to insulin
injections if a child/young person has never used this before so these should
always be discussed with the PCT.<o:p></o:p></span></div>
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<i style="mso-bidi-font-style: normal;"><span style="font-family: "Calibri","sans-serif"; mso-bidi-font-family: Arial; mso-bidi-font-size: 11.5pt;">4.3.8<span style="mso-tab-count: 1;"> </span>The Committee paid special
attention to the use of CSII therapy in children. It heard from the clinical
specialists about the importance of this treatment in very young children. It
was also aware of the difficulties and delay that a trial of MDI therapy, to
prove that such therapy was ineffective, would entail in this young patient
group. The Committee was concerned that the CORE model was not validated in
children and the data from adults used in the model could not be extrapolated
to children. However, the Committee considered that all the factors relevant to
favouring CSII therapy for </span></i><i style="mso-bidi-font-style: normal;"><span style="color: windowtext; font-family: "Calibri","sans-serif"; mso-bidi-font-family: Arial; mso-bidi-font-size: 11.5pt;">adults in whom MDI therapy had failed to achieve an
acceptable HbA1c level, or who experienced disabling hypoglycaemia, applied as
least as much to children. In addition, the Committee heard from the clinical
specialists that managing the delivery of small insulin doses in very young
children and delivering midday doses of insulin to young school children are
difficult or impractical, leading to ineffective glycaemic control. The
Committee therefore decided that, on balance, CSII therapy should be
recommended for children younger than 12 years with type 1 diabetes mellitus as
a treatment option without an intensive trial of MDI therapy if such a trial
was felt clinically inappropriate or impractical. This recommendation is
consistent with NICE clinical guideline 15 (Type 1 diabetes: diagnosis and
management of type 1 diabetes in children, young people and adults). <o:p></o:p></span></i></div>
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<i style="mso-bidi-font-style: normal;"><span style="font-family: "Calibri","sans-serif"; mso-bidi-font-family: Arial; mso-bidi-font-size: 11.5pt;">4.3.9 <span style="mso-tab-count: 1;"> </span>In developing the
recommendations for children, the Committee considered that children 12 years
and older would normally be competent to self-inject an afternoon dose of
insulin at school which would allow for a proper trial of MDI therapy. The
Committee also agreed that because MDI therapy based on long-acting analogues
is more efficacious for type 1 diabetes mellitus than MDI therapy based on
older insulins, MDI therapy should be judged to be unable to attain the
required HbA1c levels only if it is based, if clinically appropriate, on
long-acting insulin analogues. The Committee considered its approach for
children on insulin pumps who reach the age of 12 years and who, following this
guidance, would not have had a trial of MDI. The Committee considered that the
continuation of CSII could not equitably be supported without a trial of MDI
after that stage. The Committee was mindful that making such a recommendation
too strict could mean a change in insulin regimen for children who had achieved
satisfactory control of their blood glucose level. The Committee discussed the
implications of undergoing such a trial, especially during a period where
children experience many developmental, social and educational changes. It
concluded that such a trial of MDI would normally need to be undertaken
sometime before a child reached adulthood at the age of 18 years. <o:p></o:p></span></i></div>
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<span style="font-size: 14pt; line-height: 115%; mso-bidi-font-family: Arial; mso-bidi-font-size: 11.0pt;"><span style="font-family: Calibri;">This last sentence of the
discussion does not seem to follow from the preceding discussion and therefore
we are not clear how and why such a trial should be undertaken in young people
who have good diabetes control using an insulin pump.<span style="mso-spacerun: yes;"> </span>We suggest that in those young people with
the following characteristics, a trial of 8 weeks of MDI using long-acting
insulin analogues may be useful, but that it should NOT be considered to be
routine that such a trial is undertaken in young people without these
characteristics.<o:p></o:p></span></span></div>
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<span style="font-family: Symbol; font-size: 14pt; line-height: 115%; mso-bidi-font-family: Symbol; mso-bidi-font-size: 11.0pt; mso-fareast-font-family: Symbol;"><span style="mso-list: Ignore;">·<span style="font-size-adjust: none; font-stretch: normal; font: 7pt/normal "Times New Roman";">
</span></span></span><span style="font-size: 14pt; line-height: 115%; mso-bidi-font-family: Arial; mso-bidi-font-size: 11.0pt;"><span style="font-family: Calibri;">Poor control ie HbA1c
>8.5%<o:p></o:p></span></span></div>
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<span style="font-family: Symbol; font-size: 14pt; line-height: 115%; mso-bidi-font-family: Symbol; mso-bidi-font-size: 11.0pt; mso-fareast-font-family: Symbol;"><span style="mso-list: Ignore;">·<span style="font-size-adjust: none; font-stretch: normal; font: 7pt/normal "Times New Roman";">
</span></span></span><span style="font-size: 14pt; line-height: 115%; mso-bidi-font-family: Arial; mso-bidi-font-size: 11.0pt;"><span style="font-family: Calibri;">Recurrent DKA<o:p></o:p></span></span></div>
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<span style="font-family: Symbol; font-size: 14pt; line-height: 115%; mso-bidi-font-family: Symbol; mso-bidi-font-size: 11.0pt; mso-fareast-font-family: Symbol;"><span style="mso-list: Ignore;">·<span style="font-size-adjust: none; font-stretch: normal; font: 7pt/normal "Times New Roman";">
</span></span></span><span style="font-size: 14pt; line-height: 115%; mso-bidi-font-family: Arial; mso-bidi-font-size: 11.0pt;"><span style="font-family: Calibri;">Persistent non-adherence to
recommendations<o:p></o:p></span></span></div>
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<span style="font-family: Symbol; font-size: 14pt; line-height: 115%; mso-bidi-font-family: Symbol; mso-bidi-font-size: 11.0pt; mso-fareast-font-family: Symbol;"><span style="mso-list: Ignore;">·<span style="font-size-adjust: none; font-stretch: normal; font: 7pt/normal "Times New Roman";">
</span></span></span><span style="font-size: 14pt; line-height: 115%; mso-bidi-font-family: Arial; mso-bidi-font-size: 11.0pt;"><span style="font-family: Calibri;">Persistent failure to
attend clinics<o:p></o:p></span></span></div>
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<span style="font-size: 14pt; line-height: 115%; mso-bidi-font-family: Arial; mso-bidi-font-size: 11.0pt;"><span style="font-family: Calibri;">For the general group of children
and young people using insulin pumps, the body of consultant paediatricians
looking after them believes that there is no justification for a trial of MDI
before funding is agreed in adult life.<span style="mso-spacerun: yes;">
</span>To insist that a child or young person with good metabolic control using
an insulin pump should have a complete change of insulin therapy to multiple
injection therapy purely for administrative purposes risks causing significant
emotional distress and a possibility of a significant deterioration of control.
This cannot be justified on either clinical or ethical grounds.<o:p></o:p></span></span></div>
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<span style="font-size: 14pt; line-height: 115%; mso-bidi-font-family: Arial; mso-bidi-font-size: 11.0pt;"><span style="font-family: Calibri;">Julie Edge, Bill Lamb and Fiona
Campbell, on behalf of the National Paediatric </span></span></div>
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<span style="font-size: 14pt; line-height: 115%; mso-bidi-font-family: Arial; mso-bidi-font-size: 11.0pt;"><span style="font-family: Calibri;">Diabetes Networks.<span style="mso-spacerun: yes;"> </span>June 2012</span></span></div>
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<span style="font-size: 14pt; line-height: 115%; mso-bidi-font-family: Arial; mso-bidi-font-size: 11.0pt;"><span style="font-family: Calibri;">You can email your comments to: <a href="mailto:angela@diabetespower.org.uk">angela@diabetespower.org.uk</a> </span></span></div>
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<span style="font-size: 14pt; line-height: 115%; mso-bidi-font-family: Arial; mso-bidi-font-size: 11.0pt;"><span style="font-family: Calibri;">or direct to Dr Fiona Campbell or Dr Julie Edge</span></span></div>
</div>5 children diabetes, coeliacs and mehttp://www.blogger.com/profile/18355214554299409897noreply@blogger.com4tag:blogger.com,1999:blog-8450229305216272723.post-34674458016807011712012-06-25T11:19:00.000+01:002012-06-25T11:19:58.191+01:00Permanent Nights !!<div dir="ltr" style="text-align: left;" trbidi="on">
<table cellpadding="0" cellspacing="0" class="tr-caption-container" style="float: left;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjuG_nI2NJ7iPRPLkNT4_qq2i6M8Tc4mqqp5R1DzAyYKUnjoAfKNygcFgUZJPUA7hVjwEgR1ZGfB9yLGbnxRa6U81oi57RoTfEXsNl3wAUR7GpC0sSiVqoNIuLJxebCxV5iTksz8cGEGEo/s1600/Taz.jpg" imageanchor="1" style="clear: left; margin-bottom: 1em; margin-left: auto; margin-right: auto;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjuG_nI2NJ7iPRPLkNT4_qq2i6M8Tc4mqqp5R1DzAyYKUnjoAfKNygcFgUZJPUA7hVjwEgR1ZGfB9yLGbnxRa6U81oi57RoTfEXsNl3wAUR7GpC0sSiVqoNIuLJxebCxV5iTksz8cGEGEo/s1600/Taz.jpg" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">What mischief are you going to get up to tonight????????</td></tr>
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I often think that Type 1 Diabetes is like living with the Tazmanian Devil. It came into our lives and is for ever wreaking havoc. <br />
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As time has gone by, we have learnt many ways of "taming" the Tazmanian Devil. However on many occasions we are left with the words "where did that hypo or hyper come from "? Test your blood glucose again that can't be right.That's putting it politely.<br />
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We are now 4+ years post diagnosis of Claudia being diagnosed with Type 1 Diabetes and Coeliac Disease. Together we have faced many challenges and overcome many barriers. Which at times can seem endless. There have been many tears of joy and sadness.<br />
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Over the last 6 months I have found getting up through the night really tough and to be honest I am exhausted. We are fortunate and have a Medtronic Veo and CGM. (sticks in my throat using the word "fortunate" as they should be readily available to anyone who has Type 1 Diabetes and wants one!!)<br />
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<strong>Recently I have slept through alarms. How do you overcome the sheer tiredness and lack of energy? Especially when you have to get up in the morning and carry on as normal. Tips greatly appreciated.</strong><br />
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I often find that Claudia is a "moody pants" in the morning. To be honest I am not surprised. Bless her whilst sleeping soundly, she is suddenly woken by me saying Claudia you are "hypo or hyper". Followed by: you need some juice, glucose tablets or I need to give you a correction. As for me I am a right old grouch in desperate need of botox.<br />
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<table cellpadding="0" cellspacing="0" class="tr-caption-container" style="float: left;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg8-2SVIVDCsvJyvEgn-fDNxpa8VdmmFsXMcFPIo3QC0USN9mZHsOmkvoBmvoIlS8lI4TfIcwWYtfhGynNM9snB33SbWhI2ZQzcn6jpCKkTuSu210E5N7XrJnUxmtE1FKu09day88ET_Qs/s1600/oscar-the-grouch.jpg" imageanchor="1" style="clear: left; margin-bottom: 1em; margin-left: auto; margin-right: auto;"><img border="0" height="200" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg8-2SVIVDCsvJyvEgn-fDNxpa8VdmmFsXMcFPIo3QC0USN9mZHsOmkvoBmvoIlS8lI4TfIcwWYtfhGynNM9snB33SbWhI2ZQzcn6jpCKkTuSu210E5N7XrJnUxmtE1FKu09day88ET_Qs/s200/oscar-the-grouch.jpg" width="183" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"> I can be a grouch without sleep.</td></tr>
</tbody></table>
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<strong>Most challenging: making a decision during the middle of the night.</strong><br />
Do I put the full correction in ?<br />
Do I increase/decrease the basal?<br />
Do I need to change her cannula?<br />
Did I wash her hands before testing ?<br />
What to give, glucose tabs or drinks?<br />
Persuading my little lovely to take the glucose?<br />
Closing my ears to the barrage of complaints!<br />
Staying awake for those 15-20 minutes to see if they have come back up<br />
Staying awake for an hour to see if her levels are coming down<br />
Trying not to wake anyone else up in the house.<br />
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I wake in the morning wondering, how I made all those decision's!!! most importantly did I get it right. If I didn't did Donald.<br />
On the occasions I have slept through an alarm I feel like the worst mother in the world. Yet in reality I am only human and I need sleep. <br />
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The expectations of parents and children living with Type 1 are exceptionally high and demanding.<br />
Most medical professionals would find it difficult to live our lives, yet the majority of parents have no medical background. This I think makes us truly inspirational and our children exceptional as we are often met with daily challenges, yet one way or another we work around them.<br />
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Having said that, sometimes I feel an emotional wreck, get angry, cry, frustrated, confused & bewildered, yet when I look back on the previous years or days I am not surprised!<br />
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<strong><span style="font-size: large;">On my very tired days I have done the following:</span></strong><br />
TV remote in the fridge<br />
Clothes on inside out<br />
School shoes in washing machine.<br />
Taken the children to school just wearing underwear, long coat and shoes<br />
Turned up at the wrong location to meet a friend<br />
Forgotten where I parked the car<br />
Didn't put my lipstick on!!!<br />
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<strong>What have you done ??????</strong> <br />
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</div>5 children diabetes, coeliacs and mehttp://www.blogger.com/profile/18355214554299409897noreply@blogger.com2tag:blogger.com,1999:blog-8450229305216272723.post-86775713350983301862012-06-14T13:14:00.001+01:002012-06-14T15:21:16.310+01:00Family Fun Day<div dir="ltr" style="text-align: left;" trbidi="on">
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<span style="color: blue; font-size: x-large;">Saturday June 30th 2012 Preston Pirates JFC , Diabetes Power in Association with DWED, Presents our Family Fun Day at Avenham Park. Preston, Lancashire.</span><br />
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjaw096YGGTUW8dwbYNNLpixc_O2qye4AnZyTfLt8biU10E5jlCE1w-pTkhxTq9KBqk6j2w3XQdKsraa8ubiNMv99SQZR73wGd9jF0NZN-6OT-PpReJSz0NlbsGnFcnp1tUUAdRnHmyAHQ/s1600/img002.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="300" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjaw096YGGTUW8dwbYNNLpixc_O2qye4AnZyTfLt8biU10E5jlCE1w-pTkhxTq9KBqk6j2w3XQdKsraa8ubiNMv99SQZR73wGd9jF0NZN-6OT-PpReJSz0NlbsGnFcnp1tUUAdRnHmyAHQ/s400/img002.jpg" width="400" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><span style="color: blue; font-size: small;">This is an opportunity to raise awareness and have fun. If you would like a sponsor form for the 3km run/cycle please email: </span><a href="mailto:angela@diabetespower.org.uk"><span style="color: blue; font-size: small;">angela@diabetespower.org.uk</span></a><br />
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<span style="color: blue; font-size: small;">If you would like to donate a raffle prize, please contact : 07717511007 or 0771104562</span><br />
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<a href="http://www.diabetespower.org.uk/"><span style="color: blue; font-size: large;">www.diabetespower.org.uk</span></a><span style="font-size: large;"> </span><br />
<span style="font-size: large;"><span style="color: blue;">Dedicated Together we can Raise Awareness Of Type 1 Diabetes</span>.</span><br />
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<span style="color: #e06666; font-size: large;">Ps, yes I will be on my bike once again in blue and pink Lycra!</span></td></tr>
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</div>5 children diabetes, coeliacs and mehttp://www.blogger.com/profile/18355214554299409897noreply@blogger.com0tag:blogger.com,1999:blog-8450229305216272723.post-18297124995938893042012-06-11T18:08:00.001+01:002012-06-11T18:08:47.190+01:00Diabetes Power Challenge !!<div dir="ltr" style="text-align: left;" trbidi="on">
<span class="messageBody" data-ft="{"type":3}"><span style="font-size: large;"><span style="font-size: x-large;">Would DUK consider a challenge ?</span> </span></span><br />
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<span class="messageBody" data-ft="{"type":3}"><span style="font-size: large;">Diabetes Uk as the "leading, largest "Diabetes Charity" in the UK:</span></span><br />
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<span class="messageBody" data-ft="{"type":3}"><span style="font-size: large;">How about over the next 12 months making the Media Distinguish cleary which Type of Diabetes they are talking about ? </span></span><br />
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<span class="messageBody" data-ft="{"type":3}"><span style="font-size: large;">If talking about <span style="color: blue;">Type 2 Diabetes</span>, then clearly state <span style="color: blue;">Type 2</span> <span style="color: blue;">Diabetes</span>. Also stating that <span style="color: blue;">Type 2 </span><span style="background-color: white; color: blue;">Diabetes</span> is not always related to weight and Lifestyle. </span></span><br />
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<span class="messageBody" data-ft="{"type":3}"><span style="font-size: large;">If talking about <span style="background-color: white; color: blue;">Type 1 Diabetes</span>, clearly stating <span style="color: blue;">Type 1 Diabetes</span> evertime and stating it is an autoimmune disease which can't be prevented. There is no known cure.</span></span><br />
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<span class="messageBody" data-ft="{"type":3}"><span style="font-size: large;">I believe if the above basics can be achieved then it will give firm foundations to build on, in educating the wider public and health professionals. </span></span><br />
<span class="messageBody" data-ft="{"type":3}"><span style="font-size: large;">Maybe you could start the ball rolling by stating clearly in all your articles, maybe in bold or using blue ink ?</span></span><br />
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<span class="messageBody" data-ft="{"type":3}"><span style="font-size: large;">This will cost nothing to implement and perhaps. </span></span><br />
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<span class="messageBody" data-ft="{"type":3}"><span style="font-size: large;">This is the challenge I have just posted on DUK wall, feel free to comment on DUK's facebook page and say if you support the challenge.</span></span><br />
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</div>5 children diabetes, coeliacs and mehttp://www.blogger.com/profile/18355214554299409897noreply@blogger.com0tag:blogger.com,1999:blog-8450229305216272723.post-29444672816009545072012-06-10T17:01:00.003+01:002012-06-10T18:49:55.078+01:00Diabetes Week June 2012<div dir="ltr" style="text-align: left;" trbidi="on">
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<strong><span style="background-color: white; color: blue; font-size: x-large;">Please Help Raise Awareness Of The Symptoms Of Type 1 Diabetes.</span></strong> </div>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjoUmYWAhXBv9uMFzK4AZis7x3txa1JcMzq6HTn0fzLgwGlB-8TmpIbCZDzBoyS6hHFPqb9hXvu9o0pvQweYDsx_EuqH_JpPg1FgMfYAXJ6Xm4newLYM1VHSb4vbDdBnp5VXzHfCvYat9Q/s1600/HouseDW1.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="298" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjoUmYWAhXBv9uMFzK4AZis7x3txa1JcMzq6HTn0fzLgwGlB-8TmpIbCZDzBoyS6hHFPqb9hXvu9o0pvQweYDsx_EuqH_JpPg1FgMfYAXJ6Xm4newLYM1VHSb4vbDdBnp5VXzHfCvYat9Q/s400/HouseDW1.JPG" width="400" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><strong><span style="color: blue; font-size: large;">For 7 whole years of my life I was carefree. </span></strong><br />
<strong><span style="color: blue; font-size: large;">Then out of no where came Type 1 Diabetes.</span></strong><br />
<strong><span style="color: blue; font-size: small;">My mummy,daddy and GP all missed the early warning signs. If mummy hadn't have taken me to hospital on the 1st May 2008. I probably wouldn't be here today.</span></strong><br />
<span style="color: blue; font-size: small;"><span style="font-family: Arial, Helvetica, sans-serif;"><strong>Love Claudia, now aged 11.</strong></span> </span><br />
<strong><span style="color: blue; font-size: small;">Happy, healthy but living a very complex day to day life, that can bring sadness and tears on many occasions.</span></strong><br />
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<strong><span style="color: blue; font-size: large;">Please share this video at work, with friends, in schools. </span></strong><br />
<strong><span style="color: blue; font-size: large;">Whilst currently no one can stop the onset of Type 1. </span></strong><br />
<strong><span style="color: blue; font-size: large;">Diabetic Ketoacidosis can be prevented at diagnosis.</span></strong><br />
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<strong><span style="color: blue; font-size: x-large;">To many lives have already been lost.</span></strong><br />
<strong><span style="font-size: x-large;"><a href="http://www.youtube.com/watch?v=8NZxUR2dFLQ"><span style="color: blue;">http://www.youtube.com/watch?v=8NZxUR2dFLQ</span></a></span></strong><br />
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<strong><span style="color: blue; font-size: large;">This is our video </span></strong><br />
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<strong><span style="color: blue; font-size: large;">Some days are brilliant and full of fun. Other days are really rotten and full of tears!</span></strong><br />
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<span style="color: blue; font-size: small;"> </span><a href="http://www.youtube.com/watch?v=2el7wGf08eY&feature=channel&list=UL"><span style="color: blue; font-size: small;">http://www.youtube.com/watch?v=2el7wGf08eY&feature=channel&list=UL</span></a><br />
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</div>5 children diabetes, coeliacs and mehttp://www.blogger.com/profile/18355214554299409897noreply@blogger.com1tag:blogger.com,1999:blog-8450229305216272723.post-62296719887700493322012-05-19T20:19:00.001+01:002012-05-19T20:19:41.551+01:00Type 1 Diabetes & Exams !!<div dir="ltr" style="text-align: left;" trbidi="on">
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgdqiBrAY1YA3rgcBuE15Oohs2mkSfzboZGKnkJQ0OnaNEX_KOD1jeLiK3ipku0v-Xgn2MC8NhYYDIuoC8P3kqqXUqxyMDE1NSd9c9UQrvIdetgJS5bsZdJ-juYl86R6SeewDsRYQiwe9w/s1600/IMG_0279.JPG" imageanchor="1" style="clear: left; margin-bottom: 1em; margin-left: auto; margin-right: auto;"><img border="0" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgdqiBrAY1YA3rgcBuE15Oohs2mkSfzboZGKnkJQ0OnaNEX_KOD1jeLiK3ipku0v-Xgn2MC8NhYYDIuoC8P3kqqXUqxyMDE1NSd9c9UQrvIdetgJS5bsZdJ-juYl86R6SeewDsRYQiwe9w/s320/IMG_0279.JPG" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">The devil and tongue of a viper in Claudia, has been unleashed this week!! </td></tr>
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I may have been a little quiet lately. Normally I am such a gossip and spamming everyone. <br />
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Claudia is in Year 6 so for the last month or so they have been working through previous Year 6 SATs papers.<br />
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What has taken me by surprise is the way the pressure and stress has affected her blood glucose levels. I have to question whether SATs are appropriate and should our children be put under so much pressure at such a young age. Type 1 or not.<br />
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Type 1 Diabetes is a condition sadly that highlights how the body is affected by stress, excitement, etc. <br />
In Claudia's case, stress causes her blood glucose levels to drop very low constantly. 2 weeks ago school called me as they were concerned. Claudia was on her 3rd hypo treatment. I whizzed up to school to be greeted by the Head Teacher. I think reality had kicked in and they realised how much stress affected Claudia and the impact Type 1 has on a child who is put under pressure. I know many of Claudia's friends felt the same, yet their bodies are able to manage the stress.<br />
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I should point out that school have provided excellent care for Claudia since Year 2. This was a side they had not seen before.<br />
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<strong>After a weekend of lows and being awake most of the night, I was seriously considering stopping Claudia from taking her SATs.</strong><br />
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Why are we putting our children under so much pressure at such a young age ? Is it really necessary?<br />
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Schools are not equipped and often are not giving our children with Type 1 enough time to recover from "hypo or hyper" episodes.<br />
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On a practise paper, they stopped Claudia and said she could leave it. She had had a "hypo". Her levels had come back up above 4. Yet she couldn't answer this simple question: Convert 3cm into millimetres. <br />
Claudia said to me," Mummy I knew it was 30mm but I kept on writing 120mm". I had to turn away as my eyes filled with tears. How awful must it be to feel like that.<br />
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It can take up to an hour to fully recover from a hypo. Hyper's can take a long time too, depending on how long it takes to get blood glucose levels back within "normal range".<br />
Type 1 Diabetes is not a "new condition" so why are many schools, colleges, universities & exam boards still not supporting and understanding our children. <br />
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<strong><span style="font-size: large;">Why is there no set protocol to follow for Children with Type 1 Diabetes ?</span></strong><br />
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<strong>After weighing everything up we decided to take it 1 day at a time.</strong><br />
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We reduced her basal and bolus, gave free carbs, yet we still couldn't stop all the hypo's. It has been one of the most uncomfortable weeks of my life. I felt helpless and didn't really know what to do for the best. Withdrawing her from the tests would have had an impact on her education, letting her take them impacted on her quality of life. Which is the right way to jump ? Did we make the right choice?<br />
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SAT's are finally over and Claudia's levels are settling back down. I am a very proud mummy.I have to say due to the lows Claudia behaviour at home has been really challenging. As a family we are all worn out due to lack of sleep and temper tantrums. I want to have a huge tantrum too, but it would not be acceptable at the age of 42!!<br />
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEguS0N66Sd0H7IJVNe1JhiR75FxljuJIy1zQAHrUfQswdJ_YCnVJ2zS07oLq0Y0Q4G5gima_N9w_NISTtnCiEWsGUXfrvYrzj4Gg0MWs4ltsnh9HlEUZh3WPFHttuso2GLuDfrpxcz9nmA/s1600/viper.jpg" imageanchor="1" style="clear: left; margin-bottom: 1em; margin-left: auto; margin-right: auto;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEguS0N66Sd0H7IJVNe1JhiR75FxljuJIy1zQAHrUfQswdJ_YCnVJ2zS07oLq0Y0Q4G5gima_N9w_NISTtnCiEWsGUXfrvYrzj4Gg0MWs4ltsnh9HlEUZh3WPFHttuso2GLuDfrpxcz9nmA/s1600/viper.jpg" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Watch out I feel "Hypo" </td></tr>
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Claudia's temper is spectacular when she is low.<br />
I often describe her as having the "tongue of a viper" when she is on a "hypo rant".<br />
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It took me all my inner strength, not to shout from the roof tops thos week" for goodness sake, when will people understand Type 1, when will our children get the full support they deserve within education." <br />
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<strong>Instead I had to wear my smiley mask !!!! I have to say the mask is getting thinner by the day.</strong><br />
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</div>5 children diabetes, coeliacs and mehttp://www.blogger.com/profile/18355214554299409897noreply@blogger.com3tag:blogger.com,1999:blog-8450229305216272723.post-5975985393547167782012-05-15T11:02:00.002+01:002012-05-15T11:02:21.006+01:00Would you like to be involved in research?<div dir="ltr" style="text-align: left;" trbidi="on">
An opportunity to be involved in research. You will receive a thank you your time. For every referal through Diabetes Power. Diabetes Power will receive £20.00 For full details read below. <br />
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<br />Acumen Fieldwork are a medical market research agency and we contact people with specific medical conditions and disabilities to take part in paid medical market research studies. These can be looking at medications, devices and quality of life.<br />
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We currently have a study where we are looking to speak with <strong>Diabetes Type 1</strong> patients who use Insulin Pumps that I wondered whether you might be able to assist with?<br />
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It is a study looking at a new Diabetes medical device and will be taking place in <strong>London</strong> <strong>week</strong> <strong>commencing 11th June.</strong> <br />
<strong>Please note that there will be no injections, needle sticks or insulin delivery it is simply evaluating the product and training.</strong><br />
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Participants would be required to come along to the central London location for 90 minutes. The first 30 minutes would be training the participant on a new medical device and this would be followed by a 60 minute one to one interview to discuss the device they have just been shown.<br />
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For taking part in the study participants would receive an incentive of <strong>£70 </strong>as a thank you for their time and opinions.<br />
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We do have some additional criteria that we screen the participants on but essentially our client wants to speak to Diabetes Type 1 patients between the ages of<strong> 18-65 years</strong>, who are insulin dependent and use an insulin pump. <br />
<strong>We are looking for a mix of those who use a Continuous Glucose Sensor and those who don’t.</strong><br />
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If you would be interested in finding out more about the study, please do not hesitate to contact me on 0161 234 9940 or on email <a href="mailto:lizzie.coultas@acumenfieldwork.com">lizzie.coultas@acumenfieldwork.com</a> to discuss further.<br />
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If you would like to register with us to be contacted directly about future medical research projects, please go to <a href="http://www.researchopinions.co.uk/">www.researchopinions.co.uk</a> and register as a ‘HEALTHCARE USER’.<br />
We look forward to hearing from you.<br />
Many thanks,<br />
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Lizzie Coultas<br />Medical Field Manager</div>5 children diabetes, coeliacs and mehttp://www.blogger.com/profile/18355214554299409897noreply@blogger.com0