Well 8 months after our initial application for a CGM Claudia has been awarded 3 months funding for a sensor to be worn every day. At the end of the 3 months they will review Claudia's case and decide if she will be awarded further funding.
We are 24 hours into having the sensor, all I can say is WOW! Apart from the first 3 hours where the pump lost connection with the cgm(easy to rectify) and a delayed calibration reading it has been perfect and within 2 mmols of the blood glucose meter readings. As we all know different meters can give varied readings with a 2-3 mmol difference.
The CGM only requires 2 calibrations a day, 12 hours apart. (2 conventional blood glucose readings)
They do recommend that you check with your usual blood glucose meter if the pump alarms for low or elevated levels before you administer glucose or insulin.
For the first time in nearly 3 years we went to bed with peace of mind knowing that we had an extra support with the CGM. Checking Claudia's levels was lovely as we just pressed escape on the pump and it gave automatically a 3 hour reading of her blood glucose levels. No need to wake her.
I collected Claudia from school and spoke to her teachers, they loved it and found it fascinating as they could see what was happening. It picked up a hypo, but better than that one was actually avoided. They even commented that she had been a lot more relaxed.
I keep on making her laugh by saying "go on tell me your levels" for the first time she is laughing when telling me.
However until the perfect treatment is found= THE CURE
In my opinion for Claudia the pump & cgm are as good as it gets.
I always have in my mind: humans make errors therefore don't expect technology to be.
Insulin Pumps & Constant Glucose Sensors are not for everyone who has Type 1 Diabetes as everyones needs and wishes are individual.
But Claudia Loves Them Both! For us the long battle with the PCT was worth it.