|Always Remember This When Dealing With Mr Diabetes I believe The Medical Teams Should Give You This Diagram At Diagnosis!!|
Even 3 years on Type 1 Diabetes remains a complete mystery to me on occasions. Yes it is summer and you would expect to reduce the basal/background insulin & adjust the carb ratio's.
Having said that, there comes a point when Claudia diagnosed over 3 years, is only on 4.125 basal rate in 24 hours!! What's that all about?
Bless her she is still having hypo's, having said that they are greatly reduced thanks to the CGM as we have the ability to head them off using the predictive alert.(I can hear the alarms in my head)
People may question, but I have been letting Claudia run a little higher than normal. BG is currently between 7-12. It is a balance of quality of life and control. Claudia's last Hba1c was 6.1% or USA 43. I feel therefore we have plenty of room for flexibility. The heat (lol I know, when talking about the UK) plus hypo's have made her tired, ratty & on occasions Diva behaviour like you wouldn't believe. God help her future husband!
It is such a hard call as a parent: we know that good tight control, will hopefully lead to less long term health issues, however sometimes tight control can be at the cost of more frequent hypo's. I feel recently we have to think about the family as a whole and our quality of life.
Constantly caring and worrying about your child/children can be draining & the battle for good care can be soul destroying.
The most soul destroying part is when your child looks at you asking you to make her feel better.I am trying my best, yet sometimes that's not good enough.
Why is it I feel I am constantly having conversations with my self.(No I am not mad) In fact it often drains me. Trying to get the balance of good control eliminating hypo's & highs is impossible to do on a constant basis.
I wonder if the medical profession truly understand what they are asking of us. Trying to get the perfect balance is impossible, yet so many of us out there are trying to achieve it. No wonder we can have low days and feel we have let our children down.
My daily thoughts:
Will Claudia hypo today?
Will Claudia have any highs?
Have I got the basal rate/carb ratio right?
Will I need to adjust the basal rate?
Will school call today?
Is it cannula change?(check book)
Is it sensor Change?(check book)
What do I need to re-order from GP for Type 1 & Coeliac.
Do school need any further supplies?
Do I have enough Hypo Treatments?
Downloading data from pump & CGM ?
Combination of foods in evening meal in order to help support levels.
What else can I do to make life easier.
Is today the day they announce they have found the cure ?
As a parent, if you don't have Type 1 you have no idea how your child feels.
At this moment in time I am feeling ahhh, the summer holidays are rapidly approaching. It should be 6 weeks of care free fun for the whole family! Sadly that is not the case with Type 1 & Coeliac. Ahh yes the double whammy!! If I get the insulin balance right you can bet your bottom dollar that the coeliac will throw a spanner in the works!!
I have heard people say to me take a step back and relax. In my opinion that isn't an option. As a parent we get 1 chance to keep our children on the right track before they hit teenage years & adult hood.
Sports Day Tomorrow!! (I will be the shameless parent screaming, when any of my children are running)! Yet my eye will never leave Claudia.
I truly miss our carefree days, yet I will never let Mr D beat me, however on some occasions I now take a big deep breath & chill for an hour or so.(like a 70 mile an hour gust of wind!!)