|Claudia just before she was diagnosed with Type 1 Diabetes.|
|She is still climbing !!|
The 1st May 2008 Claudia was diagnosed with Type 1 Diabetes.Aged 7 she was in DKA (Diabetic Ketoacidosis) as many of us know,this is a life threatening condition.
1st May 2012 Claudia is still living with Type 1 Diabetes. Currently there is no cure.
Until the cure is found, I live with the rather harsh facts:
my beautiful daughter requires permanent life support 24/7 in the form of insulin.
|Claudia's life support system.|
The last 4 years have flown by and have been a mixture of emotions and feelings:
People often say to me "it must be easier now" To be honest, it's not. Whilst I have accepted Claudia has Type 1 Diabetes and we have incorporated it into our every day life. On many occasions I think about life before Type 1.
A song that keeps playing in my mind is:
Memories light the corners of my mind
Misty water-coloured memories of the way we were
Scattered pictures of the smiles we left behind
Smiles we gave to one another for the way we were.
Can it be that it was all so simple then
Or has time rewritten every line
If we had the chance to do it all again, tell me, would we, could we
Memories may be beautiful and yet
What's too painful to remember we simply choose to forget
So it's the laughter we will remember
Whenever we remember the way we were.
It is so hard to let go and not want to turn the clock back or want our lives back before Type 1 Diabetes and Coeliac Disease.
Those care free days, that every child should have a right too.Although Claudia has lot's of fun/laughs and plays to the max. It isn't the carefree childhood I had.
Claudia is now 11 years old and has a reputation for being brutally honest. Especially is she is "hypo" or "hyper"
Some of Claudia's recent comments and questions:
I don't want to have Type 1 Diabetes and Coeliacs
I am different to my friends
Why did have to get it and not my sisters
It's not fair
You don't understand, you haven't got Diabetes
When will they find the cure
All of which are difficult and virtually impossible to answer. As a loving mother you want to offer words of wisdom and comfort. With Type 1 Diabetes that can often be tricky.
We have achieved many things in our 4 years:
|Petitioned 10 Downing Street For Equal access To Insulin Pumps|
|Raised Funds For Diabetes UK & JDRF|
|Portsmouth To Birmingham To raise Awarness|
Clinically: "Good control" if you go by HbA1c results
carb count/weigh food and carb ratio's
operate her pump fully
disconnect and connect her pump
knows how her CGM (continuous glucose monitor)
test and maintain all her equipment
treat a hypo
test for ketones and knows the acceptable levels
blood glucose range
Yes,I am very proud and she is truly amazing, yet part of me is very sad. I wish from the bottom of my heart she didn't have to be so grown up and responsible. Children with Type 1 are truly inspirational as they manage a very complex condition that most adults find challenging.
A cure is desperately needed However until that day, the profile of Type 1 Diabetes, it's symptoms, the long term health implications and most importantly as Claudia say's:
Understand Diabetes Understand me!!
|Claudia with her friends, who do understand as they have Type 1.|
Claudia reads my blogs, we have no secrets. Claudia I would like to say:
You make me very proud and I love you with all my heart.We have been living this life for 4 years now. On many occasions you make me feel humble. Even through tears and upset you always manage to find a smile. The day they find the cure, we will have the wildest party ever. Until that day, together we will do battle with Mr D together.
Diabetes explained. Search for diabetes treatments at these private hospitals in Kent.