It's that time of year again! On top of the daily challenges of caring for a loved one with Type 1 and all that involves. We have the colds virus's and sickness bugs, lovely!!
One mum wrote a really profund sentence, that really struck home: " as a mum we sometimes spend more time in the nurses role than the role of being a mum"
The blood glucose levels rise, ketones kick in and the specialist support that is available is a big fat 0 unless you are very fortunate. It has always been a big mystery to me why the Diabetes Team think that the children will only experience problems Monday to Friday 9.00am until 5.00pm. Of course you have 24 hour cover from the children's ward, however as their knowledge of Type 1 is very very very limited, why bother calling them it's a waste of money and our time.
Claudia seemed fine yesterday then she started to cough later in the evening, her inhaler didn't help, so it was a sleepless night for all of us. I called Primary Care and took her this morning.
The Doctor was lovely, her knowledge on Insulin pumps was non-existent (pumps have been around for 20 years).
It was the usual line : her chest is rattly, she has a temp & because she has Type 1 we had better giver her some medication. Ahhhhhhhhhhhhhhhhhhhhhhhhhhhhhhh
They are careful were Type 1 is concerned yet parents are left completely unsupported out of hours. We have no medical background(usually) yet we are expected to cope. With even less sleep than normal and have frustrating conversations with the medical profession who have a very limited knowledge of Type 1.
What will it take for our children to get the support they deserve and need.
One mum wrote a really profund sentence, that really struck home: " as a mum we sometimes spend more time in the nurses role than the role of being a mum"
The blood glucose levels rise, ketones kick in and the specialist support that is available is a big fat 0 unless you are very fortunate. It has always been a big mystery to me why the Diabetes Team think that the children will only experience problems Monday to Friday 9.00am until 5.00pm. Of course you have 24 hour cover from the children's ward, however as their knowledge of Type 1 is very very very limited, why bother calling them it's a waste of money and our time.
Claudia seemed fine yesterday then she started to cough later in the evening, her inhaler didn't help, so it was a sleepless night for all of us. I called Primary Care and took her this morning.
The Doctor was lovely, her knowledge on Insulin pumps was non-existent (pumps have been around for 20 years).
It was the usual line : her chest is rattly, she has a temp & because she has Type 1 we had better giver her some medication. Ahhhhhhhhhhhhhhhhhhhhhhhhhhhhhhh
They are careful were Type 1 is concerned yet parents are left completely unsupported out of hours. We have no medical background(usually) yet we are expected to cope. With even less sleep than normal and have frustrating conversations with the medical profession who have a very limited knowledge of Type 1.
What will it take for our children to get the support they deserve and need.
Hey Angela this is so too!!! That all we get all the time! OR oh the symptoms you have are due to your diabetes!!! ( not always true)! After having only got pump in May this is my first hospital admission with it! NO_ONE on the wards know anything about it so good job I am alert enough to deal with it all my self! Or I would be struggling! We need more support and it is about time someone realised this!
ReplyDeleteOk rant over !
Hope Claudia is well soon! xx
Lindsay xx