|I love wearing sunglasses, they hide tired eyes & emotions. We just need more sun in the UK, as it's not a good look in winter.|
I suppose we have been "lucky" in some respects, Claudia is considered to have her Type 1 Diabetes "well controlled". Which I always struggle with as it is a constant battle/thought process 24/7. How can 4.9 one minute and 10 another be considered well controlled ?
Ah yes it's that lovely Hba1c/A1c that gives a % over a few months. What it doesn't reflect, is the chaos of every day life & numbers with Type 1 Diabetes & the game "Play your number right"
After a weekend of unexplained highs, followed by lows.
Today I feel like a rubbish parent. Yesterday, Claudia felt really unwell, yet there was nothing I could do to make her feel better. Towards the end of the day she felt better. This was followed by a night of lows, a sensor change/calibration.
Claudia saying "leave me alone"
The result 1 very tired Claudia, mummy & daddy.
It's those big sad eyes that look at you, saying please make me feel better.Heartbreaking
The only way I can describe the tiredness to someone who doesn't have a child with Type 1:
It's like having a New Born Baby Constantly, endless sleepless nights. Sadly there is nothing cute or lovable about Type 1.
I have sent Claudia to school. Her levels on waking were 5.9 and she wanted to go to school. I am sat here waiting for a call from school, wondering if I made the right choice in sending her to school.
In my mind:
Claudia wanted to go to school
She is in year 6 a very important year, SATs
Is it fair on school
Will school call
Should I have kept her at home
What on earth is MR D up to?
? Adjust Basal/Carb ratio?
I am not sure if this is just a 48 hour or if it's going to stretch into a week. The thought of being up all night for the next week is just ahhhhhhhhhhhhhhhhhhhhh !!
What is very striking is; Bella, Darcy & Flissy had 98-100% attendance at school last year.(harsh mummy) Purdey 100 % at home with mummy.Yet Claudia was 89% attendance, this perhaps reflects on how much Type 1 affects their school life.
So in an effort to release my frustration I have cleaned the house. The sun is coming out, so I will be able to wear my sunglasses!!