|This is all we are asking for|
Factually Incorrect Reasons/Excuses Given For Not Getting A Pump.
(sadly they are all true quotes)
Your Hba1c is too high
Your Hba1c is too low
You are having to many hypo's
Our PCT don't fund pumps
Pumps will be to complex for you
You are a single parent, so you won't cope. (seriously)
You need to have better control
It won't improve your control or quality of life
Our waiting list is 2 years
Pumps are not available on the NHS
I have worn one, they are awful
Please feel free to add to the above, the list is endless!
It is nearly 3 years after our battle for an Insulin Pump for Claudia. Have things changed, sadly no!!
In our case it was the Hospital that were blocking our application for a pump, until I really jumped up and down. The PCT in their defence, approved the application within 2 weeks.
Whilst caring for a child with a Long Term Condition, should we really have to shout, scream, lobby, beg ,cry involve the media for someone to hear our plight? Absolutely not!Yet this seems to the the case on many occasions when it comes to requesting an insulin pump and even more so when "continuous glucose monitors are mentioned.
It is only natural for a parent ,to want informed choice and the best treatment option for their child.
Better Control = Better Quality Of Life = Less Impact on The NHS. Everyone wins. This is a simple formula that works, it is not rocket science.
More importantly why should some of us have pumps & CGM's and others not. How is that fair? Depending of the beliefs of Hospital Teams & PCT's. Should they really have that "power".
NICE guidance. Why do we have it? It would appear that Hospitals & PCT's can use it when they want and then ignore it. There seems to be no accountability.
Caring for a child with Type 1 Diabetes is 24/7. On top of that we are expected to do battle with Education, Hospitals, PCT's. When is this going to end! It is wrong on every level. What about the parents who are unable to fight and don't understand the system.
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